Inquiry into Implementation of the National Disability Insurance Scheme and the Provision of Disability Services in New South Wales
Name: Mrs Karen Hair Date Received: 1 July 2018
Partially Confidential
Hi Kate.
Will try to keep it short. A review NDIS plan done in Oct 2017 was submitted last Dec because of a
lack in funds. In January our 37 y.o.son redacted urgent and extensive spinal surgery because
of loss of leg function and right hand and arm function. He is now mostly in a borrowed
wheelchair. He now requires a hoist for the bath, a new bed that lowers to the floor and a new
customised wheelchair which he has been measured for. We submitted a change of circumstance
review through our support coordinator in early June. This week 27/6 we received a revised plan
which was just basically a rehash of the original plan. On 29/6 a third plan, exactly the same as
27/6 plan was sent. Amounts for the different areas of redacted plan were basically the same as
original plan, but the biggest shock was $120,000 being slashed from his Core funding. We were
not given any notification that this was to happen and am very concerned that our son’s future
needs, therapies other interventions and the equipment he now needs will not come to fruition.
Kind regards, Karen Hair