Submission No 143
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Name suppressed Date Received: 3 August 2018
Partially Confidential
I have 7 different specialists and systemic health problems that affects my whole body . lots pain fatigue migraine mobility issues .Lots of medical bills
Denied Ndis because my medical conditions not on their list
I live in private rent single parent struggle to afford everyday bills health insurance and my health gets put last because I cannot afford it because of cost . So I have to go without
I have applied public housing told 5 to 10 years or 10 years plus near my doctors
As I have rare disease it is difficult to find a specialist and care so can’t use public health system doctors
I am aboriginal but still don’t get help with the cost of medical bills like others because my conditions are not diabetes Or cardiovascular and my Brain tumour removal was benign
I do get help from aboriginal homecare but I cannot afford a lot of care because of cost . It used to be free for aboriginal people . They are unreliable don’t always have the capacity to take me to doctors but I don’t have a choice but stay with them because I don’t have a Ndis pack age
Best Regards