Challenges securing support for Nikki

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Submission No 157

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Mrs Kathy Manning Date Received: 6 August 2018

We are very new to adult disability services. We have been looked after by the team at Kaliedscope at Hunter St Newcastle since 2009 . This year Nikki was transfered to NDIS and we are having issues finding the same level of support and care, i do not understand the funding side at all, but at this time its more about finding the same group of proffessionals that were providing the care previously. Our docters at the John Hunter were conected to the physios at Kaliedscope, made tailoring Nikkis care easy. Now her botox is even done outside the hospital, so we dont even have that to fall back on. Our local docter was never really part of that decision making either, so does not have the expertise to help either.