Submission No 194
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Mr Dave Young Date Received: 7 August 2018
Tuesday, 7 August 2018
Submission to the Inquiry into the implementation of the National Disability Insurance Scheme (NDIS) and the provision of disability services in NSW
NSW Parliament
To whom it may concern,
My name is David Young and I am the father and full time carer for Alexander Young who is in the NDIS ( ) and has been since the beginning. He has cerebral palsy and spastic quadriplegia and is in a wheel chair full time.
Alex has been within disability support for all of his life and as a full time carer we applied to have a ramp built about 4 years back to allow us access to our home where Alex lives full time with me as his carer. The original submission took ages and a lot of drawings and council approvals before the disability support knocked back the proposal. Once the NDIS came into being Alex was one of the first on the Central Coast of NSW to be on the list. We again submitted for a ramp to access the home and as we have 8 steps to gain access we felt that this is essential. As his father and carer and now 64 years old, as he gets heavier (70kgs) and I get older, dragging him up and down the stairs in his wheel chair has now left me with a hernia and imminent surgery which I cannot get until we are able to get assistance. That cannot happen until we have access to our home as no carer will do what I have now done for the past 4 years, ie dragging my son up and down the stairs. His mother, who only lives about 10-15 minutes drive away has contributed nothing to his welfare and does not often see him since our very difficult divorce 22 years ago. She needs help but as a full time working nurse will not get it as she thinks it would impact her work.
Disability advocacy is essential to those with disabilities. We have no-one to report this sort of stuff too if this disappears. I implore you to do something as this situation is untenable in light of the fact of what we see money being squandered on by these current Governments
Sincerely,
Dave Young
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