Son's acquired brain injury and meningitis impacting NDIS access

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Submission No 30

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Mrs Lorraine Tydeman Date Received: 9 July 2018

The NDIS for us has been very good for us as, we moved away from Sydney after my husband died from cancer. When we moved up here I took my son to Ageing and Disability to get assessed for services. His primary school years he attended an IM class and then his High Schooling was at Lawrence Hargraves School for Specific Purposes. He had 2 bouts of meningitis when he was a baby so was classed as having an Acquired Brain Injury. I have all the paperwork and doctors reports. Ageing and Disability got my son to see one of there Psychologists who did a report saying that prior to the age of 18 my son did not have an intellectual disability, Part of there testing, was IQ under 70 to get there services, my doctor was horrified as he said that was wrong it is very unreliable. Despite having documentation from school counsellors and specialists saying otherwise. We were here for 4 years and after using the Disability Advocacy Service we got my son into a day program which was 20 hours a week. But couldn’t get other services like respite accomodation. He is a totally different person now as he is socialising and doing things he likes