Son with high functioning autism, ADHD, and anxiety awaiting NDIS support

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Submission No 31

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Name suppressed Date Received: 9 July 2018

Partially Confidential

I began the process of gaining support and funding for my son (who was 5 at the time) in September 2017. He has high functioning autism, ADHD and anxiety. My family live in remote NSW with our closest large centre being approximately 130kms away. I am STILL waiting to be contacted. I have rang NDIA many times and “local” agencies but am told I am on a waiting list. Our eldest son also has high functioning autism but has come such an amazing way because of the early intervention he received years ago through the HCWA package. Early intervention is a MUST for children with special needs but unfortunately we have had to cease the early intervention for our youngest son because we don’t have the resources where we live, social support or financial support. This has had an obvious flow on effect in our family. Living life remotely with a child with special needs is hard but is being made all the more harder from failure of support from the NDIS.