Stroke survivor's experience with NDIS plan allocation

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Submission No 337

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Name suppressed Date Received: 17 July 2018

Partially Confidential

Hi i am a 27 year old mayjor stroke survivour 2016, i had a rare stroke and a rare condition called locked in syndrome. I have made an amazing recovery and my brain is unaffected as i was lucky enough to of had a brain stem stroke. I recieved my plan back in november 2017, safe to safe i was a little disappointed not with the amount but to of which it was allocated for. It was allocated for the area of core supports which is primarily for disabled mentally afftected by way of support workers group accomodation, day activites and outings for real special needs and hardly any in the capacity building area of where i like. I have complained rather a few times and am now getting a new plan which will include capacity building skills. The way i see NDIS is as an enabler of compilancy and those not taking the opportunity to build and grow, develop indenpendence as it was aimed for. It is aimed at gaining independence back, grab the ooportunity and run with it. Dont become a compliant client. Dont be disabled, enable yourself.