Submission No 44
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Name suppressed Date Received: 10 July 2018
Partially Confidential
My daughter was on ADHC funding before changing to NDIS. I had the flexibility of choosing the providers and the activities which my daughter used for a long time. The left over funding was transferred back to ADAHC. But I could relax with the knowledge that it was there. Since it was decided and review was not needed, unless request was made by the clients, it saved time and money for everyone. NDIS funding was not catered for someone who is transitioning to there own place. Its either SIL for full occupant or group home model. its been a struggle for me as my daughter just started her transitioning. More over contacting NDIA every 6 months is tedious and ridiculous as well. Second year funding was so low that I was asked to cut down my daughters activities leading her to gain weight. If this continues her health will deteriorate. I do understand that NDIA expects results for the funding, but this does not happen overnight or six months to a year. It takes years to show the results. It does give me anxiety to think that I have to carry on fighting till my last breadth. Funding should be decided for life and needs to be reviewed when necessary.