Daughter's care needs and changes to her support

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Submission No 55

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Name suppressed Date Received: 10 July 2018

Partially Confidential

It has taken the whole first year to get. What my daughter asked for. It took an incident to get action, they say good things come out of bad. As I see it some providers hav,t got around to the changei. Ie.my daughter now buys the service she wants and needs not what the service has to offer. My daughter is deteriorating and finds change difficult but she now needs one on one care so I have tried to make few changes to her life as possible. The concept of the NDIS is great but it will take time to over come the Changes,in the way we think,and it has given families more control ,to meet the needs not only those that access ndis but the needs of the whole family, thank you my daughter is happy in her unit and she now has the right support. This will change as she gets older and I hope that doesn’t prove to be another big hurdle to jump. It has been quite a year but I look forward to a more peaceful one next year. Thank goodness for my coordinated of support. I hope funding will continue for them and for disability advocacy I have had to use both services and they have been of great support. Thank you for this opportunity to add my bit and to say thank you to a lot of hard working people. Regards