Carer's challenges in providing care for a child with a disability

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Submission No 77

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Ms Belinda Dixon Date Received: 15 July 2018

The NDIS has given exhausted carers more red tape to care for their child. The disability organisations are cashing in and abusing the limited resources for individuals, especially in rural and isolated areas. The NDIS is not their way as it has taken so much from the quality of life for individuals as well as putting extra pressure on already overwhelmed carers and parents. We have to deal with ill qualified staff within the NDIS and LACs that have no idea what is involved in the day to day stress and life of a household with disabilities present. Repeating the story over and over and filling out more forms on a yearly basis is mental torture and the mental health of carers that are surviving on a will to give a decent life to their child as their energy was sapped years ago and there is little relief, has not been taken into consideration at all. On a side note. If the NDIS doesn’t have enough money to continue the life quality that these kids had before the NDIS took over, try using recycled paper and not saturated purple ink on all the unnecessary “junk mail” and when you have obviously pushed a carer over the edge, Help them with someone that knows what they are talking about. Surely it is more cost effective and better for the individual to stay in their home but they way the NDIS has been created, I see alot of carers throwing in the towel and it will be the government responsibility for 24 hour care then. The NDIS does not work.