Submission No 78
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Name suppressed Date Received: 15 July 2018
Partially Confidential
As a mother and Carer for my 25 year old severely intellectually disabled daughter life has not been without challenges. She is a beautiful daughter and we have always tried to have a great and positive life. Unfortunately the past 13 months of being on the NDIS has been the most frustrating, distressing and upsetting time of all. We have had 2 major services close, decrease in budget in 2nd plan, services that were paid in her first plan cut from her 2nd plan causing us to pay, confusion, lack of compassion, lack of support and the need to complete a ‘Review of a reviewable decision’ application and awaiting that decision. I am so dissappointed. It has stressed the people who are already stressed, the people trying to cope with life the best they can, the people who know and care for their precious loved one. There is a lot more to say but I’m tired of saying it, of whinging, of going over and over all the issues, going round in circles, of nobody caring. It’s all in the review application and I hope we are heard.