Supplementary Submission No 83a
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Mr Lee and Mrs Penny Flowers Date Received: 15 August 2018
Partially Confidential
To Whom it may concern My husband and myself are getting older, we thought, that getting our daughter , getting used to being away from the family home, becoming as independent as she could, knowing that would have to rely on others to assist her along the way. 13 years ago, we were able to have that opportunity for her to gain that independence, being looked after, and us as her parents, could start trusting services to care for her. was placed in a group home run by where she met others alike. The house belonged to ADAHC but was run by After 10 years they moved to a purpose built home in , still run by , and owned by ADAHC, a lot of issues arose from moving, the care failed due to the high turnover of casual staff, this caused a large amount of medical problems to escalate, inadequately fed, being admitted into hospital regularly. Resulting not wanting to return, not having the energy to even administer her own insulin. Having complex medical issues. In a short time later, in February of this year, I was advised there was a group home became available so close to our home, this is what longed for to be close to us. I applied and was approved, this I thought would be the making, was excited to know that her dreams had finally become a reality, but, this was short lived, due to her complex medical, and diabetic needs, was admitted into hospital, and this is
where she is 127 days and counting where she was turfed out and deemed homeless. Reality is that continues to languish in hospital whilst everyone avoids responsibility and ignores the facts that my daughter is a insulin dependant diabetic would like to lead a full life, but no one will own up who is going to fund a RN to administer her insulin. Before the NDIS had a nurse come to the house in and was paid by the government but now, no one will take responsibility, I have attached, of some of the goals, wanted to achieve, but that has been taken away from her. So we as parents and her legal guardians, have been there everyday, providing, support encouragement, making sure is adequately looked after, and essential everyday items, as these were not even brought into the hospital. I challenge those to walk in our shoes, and see what it is like.
Yours kindly Lee and Penny Flowers