Challenges in NDIS planning for David's independence

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Submission No 85

INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES

Name: Mrs Susan Munro Date Received: 13 July 2018

NO

Prior to NDIS David was in the Independent Life Skills Program with ADHC. We were told at the time of changeover to NDIS it would be a smooth transition. We had our first Pre Planning Meeting with our goals, history, and people who were and are supporting David at this meeting. We had a Provider at the time, being Janali Community College staff along with David’s Job Support personnel who support David with his employment with Woolworths. This meeting took 4 hours, so we assumed all would go well. Not so there was no follow up and Plan 1 arrived in the mail 2 months later with monies allocated into wrong boxes and our goals not recognised as requested at the Plan Meeting. Money in areas we did not request, even the management of this Plan was wrong.

Within a fortnight of receiving this plan we put in for a review, which was our right under the guidelines….we heard nothing, we tried to contact, no response. 12 months had almost gone by, so contacted my local state member and he pased it on to the Disabilities Minister to request a new Plan Meeting as soon as possible. This step bought a result it seems because we were contacted for our Pre Plan Meeting Date. Again we had all relevant papers and discussed our goals and how we would like this Plan managed. The Pre Planner appeared to understand our requirements for David to move forwards to independence. This meeting took place early June 2018. We have now run out of our core support monies ( which was scant to begin with) which had been placed in other categories we had not asked for at the beginning of this program in 2017. We are still waiting for the final plan to arrive, it is now 13.7.18. We are anxious waiting as we cannot move forward with David til this is produced. He has a straight forward requests, a service provider to manage his plan, we as his parents do not wish to manage his finances as we are in our 70’s and not around for ever! David requires a skills based program so monies need to weigh towards his core supports. We continue to feel frustrated over these matters pertaining to the management of the NDIS. There appears to be many organisations running these programs and is very confusing with out support. I hope I have been able to be the voice for our son and his plight to date with the NDIS. Just to note ADHC was a much more suited program for our son to travel along to independence.

Thankyou Susan Munro (mother)