Submission No 91
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Name suppressed Date Received: 25 July 2018
Partially Confidential
Hello,
The NDIS is definitely not working for me.
I was rejected by the NDIS…NO interview, I had letters from my Doctors and speech therapist. Someone from the NDIS contacted my Doctor a second time asking for more information but said the Doctor did not get back to them in time.
My Doctors recommended I get and need services from the NDIS.
Firstly what they don’t understand is you can’t just ring up and get an appointment with a specialist. My Doctor did email them back with the answers to their questions but they said they had already made their decision. Once again I had to chase this up.
My current provider is , which finished on June 30th, now they have an extension as there are so many people without services including myself. I have no idea for how long this extension is for.
I’ve been given the run around by all parties.
I am appealing the NDIS decision with the Disability Advocacy group which have been fantastic. I have a meeting in several weeks and an appeal date in September.
I was told to apply for My Aged Care…well what another hurdle, hassle and difficult process that is. Firstly I am not 65. I fall in this “gap” Then I get an exemption. I’ve now had my assessment after nearly 4 weeks and they can not believe I was rejected by the NDIS. I will receive a letter “sometime” saying if I’ve been approved…..but the waiting list is ONE YEAR!!! This is incredible. What do I do in the mean time?
I had to apply for transport from Community Transport…once again I am not 65. I fall in a gap, plus they can not take you to rehab if there will be an “improvement in your situation” what do they think rehab is all about, that’s why people go there, to work hard with the specialised personnel, practise at home, of course you want to improve. I’ve used community transport before but now with the NDIS that’s not available to me.
The amount of stress, anxiety, paperwork, phone calls, time energy spent of this NDIS process is truly appalling. The NDIS is failing people with disabilities their families and the community.
The whole process and non transition is one big mess.
Thank you for your time.