Submission No 93
INQUIRY INTO IMPLEMENTATION OF THE NATIONAL DISABILITY INSURANCE SCHEME AND THE PROVISION OF DISABILITY SERVICES IN NEW SOUTH WALES
Name: Name suppressed Date Received: 22 July 2018
Partially Confidential
Before ndis we used to wait months for essential equipment which we thought was too long but when the equipment did arrive it was well used. Now, with ndis, equipment can take a year or more to arrive and this causes a lot of harm. For example, we submitted a request and quotes to ndis for a walking frame, by the time it arrived our son was unable to use it as due to the lack of a standing and walking frame he hadn’t been able to take any weight on his legs, this resulted in hm requiring double hip surgery. He has been waiting for 16 months so far for his electric wheelchair and gravity chair. As a result of not having adequate supportive seating his spine has begun to curve. He has grown 20cms whilst waiting for the wheelchair so before it was even delivered we had to have a remeasure as the seat was already too small for him. We have been waiting for a hospital bed and hoist for 16months. We do have the bed, but no bed rails and we have a sling for the hoist but no hoist so we are still continuing to lift and carry over the recommended 15kgs all day, every day. These waiting times are totally unacceptable We also moved house recently as our house couldn’t accommodate his wheelchair. Now we have been told that we won’t be approved for home renovations because we didn’t seek approval from ndis before we moved. Seriously!!? This system was broken before it even began. So much inequality