Submission 20 — Carmel Murphy — Inquiry into services for people with Autism Spectrum Disorder

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Submission

No 20

INQUIRY INTO SERVICES FOR PEOPLE WITH AUTISM SPECTRUM

DISORDER

Name: Carmel Murphy

Date Received: 24 February 2016

Submission S020 Received 24/02/2016 Family and Community Development Committee

have a special stroller. She scratches, pinches, bites, pulls hair & constantly throws anything in sight. She has trouble communicating & gets frustrated. You cannot take your attention away from her for any length of time. Whilst the medication is helping, this is not a long term solution.

MEG & HOUSING:-

Meg lives at home & we have in house respite for 3 hours a week, I apply for more respite in school holidays through Gippsland Lakes Community Health. I have applied for additional respite in the ISP from the DHHS. I dream of the day, my husband & I may get away for the weekend.

MEGS SPORT:-

Meg loves swimming, horse riding, yoga & sailing. All of these come at a cost, so she gets to do things when we can afford them. Once again I have applied for more funding to support these activities. There is a lack of dance studios in the area & Meg is not able to play, netball, soccer, ride a bike etc.

MEGS EMPLOYMENT:-

I’d like to think, Meg will be able to work one day with some assistance & that there will be opportunities for this to happen. I’d like to hear & witness mentoring programs being created in the work force in the Gippsland region.

MEG:-

We have a very complex girl, Meg does not fit into the Autism basket nor the Down Syndrome one, she is an individual person who we love & care for to the best of our ability. I believe the Gippsland region is one of the last on the list to receive the NDIS (Jan 2019). What a shame we could really do with the extra help NOW! I’m happy to discuss anything further & in more detail.

Kind Regards,

Carmel Murphy.

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