Submission
No 45
INQUIRY INTO SERVICES FOR PEOPLE WITH AUTISM SPECTRUM DISORDER
Organisation: Good Shepherd Australia New Zealand
Date Received: 21 March 2016
Submission S045
Received 21/03/2016
Family and Community Development Committee
From: Inquiry into Abuse in Disability Services POV eSubmission Form cso@parliament.vic.gov.au
Sent: Monday, 21 March 2016 2:48 PM
To: FCDC
Subject: New Submission to Inquiry into Services for People with Autism Spectrum Disorder
Inquiry Name: Inquiry into Services for People with Autism Spectrum Disorder
Mrs Gaye Hart
redacted: s47F - Personal privacy
Family Solutions Group Work Coordinator
Good Shepherd Australia New Zealand
redacted: s47F - Personal privacy
redacted: s47F - Personal privacy
SUBMISSION CONTENT:
This submission has been created by Gaye Hart (Group Coordinator) on behalf of the “Living with Autism Spectrum Resource Support Group” The following is a summary of the comments made and discussed about experiences that relate to terms of reference for the inquiry into services for people with autism spectrum disorder. The Resource support group runs 1 x monthly and the information gathered below has been collated in dot point form from the meeting held informally at the local library on Monday 21st March. All participants on this day (5) offered input to be collated as a group due to difficulty to put this together once at home with their children.
General discussion and points raised by attendees.
- 3 monthly “PSG” meetings (Parent support Group), being told supports won’t be available after 3 months.
- Time for staff to attend appointments (PSG) is not always available.
- Psychologist and speech not always available
- Distance and quality of service. One service (psychologist, speech etc) to cover a wide region. Creating non priority criteria, no service.
- Promises for transition program from grade 6 to high school. Told over 3 meetings happening, then, when term 4, informed program no longer exists.
- 1 x monthly psychologist and/ or no access to OT? Speech or aids. Not in all schools.
- Child may have one good day, and this falls on a testing day.
- IQ level does not correlate to performance.
- In grade 6 had test for performance, e.g. tying shoe laces, buttons. As child was able to do this on the day lost funding for high school when had been receiving funding in primary school. Concerns re support can be lost when child having good days.
- Concern educational needs not being met when services spread thinly.
- Having access and knowing about special programs available for all ages of children/adolescence.
- Lack of/ or inadequate supports for services in autism spectrum are reflected within families. Presenting to services in crisis as whole family are affected. A holistic approach of services would benefit.
- Feedback March 21st 2016 - group participants attending resource support group, offers hope, sharing,
understanding, time out and ability to strive forward.
- Support groups for the parents/carers.
- NDIS to support the individual on the spectrum, however, the advocate usually the parent also requires emotional support.
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