Submission 23 — Mary-Anne Brownlie — Inquiry into the implementation, performance and governance of the National Disability Insurance Scheme in the ACT

From: Mary-Anne Brownlie

To: LA Committee - HACS

Subject: NDIS feedback

Date: Friday, 23 March 2018 1:55:51 PM

Hello,

I write to provide feedback on the NDIS scheme in the ACT. I have MS and am wheelchair bound with limited motor skills and am in my second NDIS plan. The sentiments of NDIS i.e. to give us choice in assisting us to live with disability is beyond brilliant. However as with many government plans the bureaucracy has rendered it unusable. I need help to dress in the mornings as my husband works three jobs and has to do all the housework so this seems like a pretty reasonable thing to ask for help with but this help is completely unavailable. The main problem is lack of carers and they pick and choose who they will or won’t help. The other main problem is there are people who would like to help but have thrown their hands up in the air in despair because getting NDIS certification has proved beyond their tolerance and capacity.

Also FOR reasons completely unknown my second NDIS plan I was changed to agency manage so I can’t go and find help. I also use private cleaners that I’ve used for over five years and can’t get NDIS help to pay for them. Please make it more usable or what the hell good is it.

Mary-Anne Brownlie