Inquiry into the provision and regulation of supported accommodation in Queensland
Submission No: 7
Submitted by:
Publication: Making the submission public but withholding your name - Attachments: No attachment
Submitter Comments:
- My son has been in SIL accommodation for ASD Level 3 and chronic and life long psychosocial disabiliƟes (Schizophrenia plus others) for around 4 years.2. My son has had 6 SIL providers during that Ɵme.3. All 6 SIL providers pertained to have the relevant skillset and staff to assist my son to progress, lead his best life, work toward his NDIS goals and achieve recovery as best he can.4. 5/6 SIL providers (we have just changed to #6 so yet to be determined) did not have the experience, understanding, NDIS processes, planning, risk assessments in place required to support my son. The majority ignored clinician advice or did not collaborate with them at all. These SIL providers were not able to achieve one single thing that they advertised and verbally assured me they had in place for a person with very complex disabilities of my son’s nature. Complaints have been made to the Quality and Safeguards Commission about 2 of these SIL providers with the outcome being ‘education’. I took one of these outcomes further due to the risk the SIL provider placed my son under and the outcome was increased to a ‘warning’.5. My son is a shell of the young man he once wanted to be with his mental health declining significantly over the last 4 years which I believe has been directly caused by SIL providers, their staff and the NDIS having absolutely no idea how to support him. He was full of hope at age 19 and he has been through trauma (extremely abusive support worker), been placed at risk and fully enabled to the point where he is now institutionalized to the NDIS ‘system’ at age just 23. The fear of him now losing funding is so great for our family our whole life is just one big traumatic event. I now have chronic high blood pressure (hypertension) and take anxiety medication. My husband had a heart attack. My son has been in and out of psychosis for 4 years (with NO SIL provider knowing what steps to take, ie, notify his treating him and so just left him in psychosis for months and months) and just when he appears stable, he seems to now be having psuedoseizures possibly from stress. I have never encountered the level of stress in my life that dealing with the NDIS and SIL service providers has caused and it has been suggested by my psychologist that I now have PTSD.6. The above does not even cover a small porƟon of what my son and our family have had to endure. I would submit the submission I made to the Royal Commission but am unable to do so without idenƟfying my son.7. I would be more than happy to be called as a witness but unable to do so in order to protect my son’s privacy.