Practice Guide – Motor Neurone
Practice Guide – Motor Neurone Disease
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Contents
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Purpose ………………………………………………………………………………………………………. 3
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To be used by ………………………………………………………………………………………………. 3
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Scope ………………………………………………………………………………………………………….. 3
3.1 Motor Neurone Disease (MND) ……………………………………………………………………. 3
3.2 Functional impacts of MND ………………………………………………………………………….. 3
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Pre-planning ………………………………………………………………………………………………… 4
4.1 Primary disability ……………………………………………………………………………………….. 4
4.2 Severity indicator tool …………………………………………………………………………………. 4
4.3 Streaming …………………………………………………………………………………………………. 4
4.4 Plan duration …………………………………………………………………………………………….. 4
4.5 Making appointments………………………………………………………………………………….. 5
4.6 Planning conversations ……………………………………………………………………………….. 5
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Planning ………………………………………………………………………………………………………. 6
5.1 Documenting comments in a participant’s plan ………………………………………………. 6
5.2 Core supports ……………………………………………………………………………………………. 7
5.3 Capacity Building supports ………………………………………………………………………….. 8
5.4 Capital supports …………………………………………………………………………………………. 9
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Supporting material ……………………………………………………………………………………… 11
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Feedback …………………………………………………………………………………………………… 11
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Version change control ………………………………………………………………………………… 12
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Purpose
The purpose of this Practice Guide is to support National Disability Insurance Agency (NDIA) planners and delegates when planning with participants living with Motor Neurone Disease (MND) to understand their disability, support needs and create a positive experience as they engage and connect with the National Disability Insurance Scheme (NDIS).
To be used by
- Plan Developers – Planners
- NDIA Plan Delegates
- Business Support Officers
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5.3.2 Support Coordination
Participants living with MND are streamed Super Intensive due to the frequent support required in progressing through the NDIS Pathway. Make sure there is sufficient funding for coordination of supports in Capacity Building > Support Coordination.
Part of the support coordinator’s role is to assist the participant with resolving points of concern, unexpected service delivery issues, developing capacity and resilience in a participant’s network, and coordinating supports from a range of suppliers or providers.
This role includes providing the NDIS with any assessments and reports completed during the plan period. Support coordination reports and/or updates based on their experience planning with the participant must also be provided.
As with all services, the participant retains choice and control as to their preferred provider for support coordination.
Refer to the Standard Operating Procedure – Include Support Coordination in a Plan for further information.
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Practice Guide – Motor Neurone Disease
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