Developmental needs of children with disability

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ASDPotH.tt 29 September 2023 Ref: 20230929/CALC

 To: Standing Committee on Community Affairs Legislation Committee

   Re: Australasian Society for Developmental Paediatrics (ASDP) submission to the Inquiry into the
       Disability Services and Inclusion Bill 2023 [Provisions] and Disability Services and Inclusion
           (Consequential Amendments and Transitional Provisions) Bill 2023 (the Bills)

 Thank you for the opportunity to provide input, bringing the developmental paediatric perspective,
 to the Legislation Committee of the Standing Committee on Community Affairs. The ASDP (formerly
 the NBPSA) is a membership organisation for doctors, including paediatricians, general practitioners
and child psychiatrists who have a specialist interest in working with children with developmental
  difficulties or disorders, their families and carers. The majority of Society members are paediatricians
who care for children and adolescents with intellectual disability, as well as other diagnoses.
 Paediatricians are responsible for diagnosis and management of the majority of children with
 developmental difficulties or disorders children in Australia.

We support the proposed Bills as they relate to a broad definition of ‘people with disability’. However, the needs of children with developmental issues and disability are significantly different to those of adults, and don’t receive specific recognition within the proposed Bills. The Bills will better serve affected children, as well as their families and carers, with specific inclusions which address their unique needs.

The developing nature of children necessitates special consideration within the Bills.
 Neurodiverse children have varying levels of disability arising from complex, brain-based conditions.
 These conditions can change rapidly as a child develops. The early years can decide the degree of
  disability a child may face as an adult. While employing a social model for care, children with neuro-
  disability have multiple needs that require a team approach with input from health, education and
 other professionals.

 Consideration of the developmental context of disability supports and services across the age
 range.
 For some children, an accurate diagnosis may not be clear, or even possible, early in their life course.
 For many children with developmental disability, research suggests that it is important that
 complexity, including psychosocial context, is considered, with therapy targeted at the child
  holistically rather than at any particular symptom. Therefore, integration of services with
 consideration of educational needs is important, as is the consideration of support needs of both the
  child with disability and their other family members and carers.

 Convention on the Rights of the Child
The preamble of the Convention on the Rights of the Child states that "the child…needs special
 safeguards and care, including appropriate legal protection…”. It further identifies, in many of its
  articles, the protections and considerations which ought to be made to children. Article 23.3
                             Neurodevelopmental and Behavioural Paediatric Society of Australasia t/as

outlines that assistance extended to children with disability should “be designed to ensure that the disabled child has effective access to and receives education, training, health care services, rehabilitation services, preparation for employment and recreation opportunities in a manner conducive to the child’s achieving the fullest possible social integration and individual development…”.

    It is the firm view of the ASDP that the needs and considerations for children with disability differ to
 those of adults. We strongly advocate for the inclusion of specific references to the developmental
 needs of children with disability within the Bills.

We would welcome the opportunity to provide further input to support our position.

 Kind regards,

 Dr Katie Heathershaw               Dr Samantha Kaiser
 President                                Chair, Advocacy Committee
ASDP                          ASDP

                             Neurodevelopmental and Behavioural Paediatric Society of Australasia t/as