General issues around the implementation and performance of the NDIS

Submission 13

I am sick and tired of having to fight for every little bit of support. My daughter is blind in one eye ( so much so things like Xmas decorations with glitter can’t be in our house, smoke, dust, etc) we need a scooter with a canopy to keep as much of the sun out as possible,sunglasses and a hat aren’t enough and she fights against them due to sensory issues( she is recognized by the NDIS as autistic) She needs to be able to access off the shelf shoes the shoes from specialists she wears to go out(which don’t last long 3 pairs a year is a joke. The shoes off the rack namely Homy Ped shoes are used around the house etc.shoes that I am told others are allowed to have NDIS funded ) daughter was getting shoes from a supplier in Palmwood through MASS and we had no problems with them as so many other shoes causeissues , blisters,the bones in her feet cause holes in the shoes She has been so long withoutsupport that now it has become an autistic ritual so that has to be worked on.We both needenough time with Occupational Therapists, Physiotherapists etc I need a bed that will raise and lower so i don’t have more pain than necessary to get in and out of bed my feet oftenswell to the point where i can barely walk , so i need one that raises and lowers at the feetthe bed needs to raise and lower also so I don’t end up on the floor or go face first intothewall My mattress wouldn’t be suitable for this bed its as cheap as we can get so the NDISgets its monies worth. Will the Minister take responsibility if i damage myself now or longterm ?? knowing my arthritis etc.the whole thing pushes my depressive disorder /bipolarpast its limits ( I am also accepted for Mental Health.) I need a means to get myscooter in and out of my car without crippling myself I have a road worthy , and a letterfrom the mechanic stating the car is in good /excellent condition. If my back issues and neck issuesand shoulder issues are medical( which is a typical cop out ) how come icant bend or lift orgrip I have Rheumatoid arthritis and god knows what elselwhich without support is going toget worse ( I have nursed such people in years gone by.

My daughter and I need the help we need to function Julie Couzens