Funding challenges for daughter with intellectual disability and SIL needs

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To Whom it May Concern

needs 24/7 care , as she doesn’t have cognitive skills to make most decisions live in a group home with 4 other residents.

We have become concerned as the direction of NDIS in providing funding for those that need the funding the most. In particular we are concerned about funding for transport for community access, and SIL

We ask that you please accept my submission on Transport and SIL in the following pages.

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Transport

Transport funding is not keeping up with the real world costs of transport of disabled people going about their daily lives where we will, our suburbs are spread out, so the places that people go are not just around the corner or about 2-3 km from home. Places is a 40 min, is nearly 1 hours drive, in the city is another 40 min drive Going to the beach is still at least a 40 minutes drive.

The funding tier levels for transport, needs to meet the needs of disabled people to be inclusive in the community. If adequate funding is not available then the NDIS is denying disabled people to the right to have access to the community.

Our personal situation for my intellectually disabled daughter, who is out in the community 3 days a week, (previously she had 5 days week), is struggling to find enough funding for her transport to her activities in the community.

As the cost of transport is around .98km, having to travel up to 40-50km is blowing out the funding. Plus the providers are now charging for the use of their vans to transport people(double dipping). My daughter is on level 2 funding and needs more, but because she doesn’t work anymore, apparently she is not entitled to any more. This is unfair for her, where places to visit are just around the corner. My daughter doesn’t work anymore because she became traumatized at work because of incidents, and had to leave it. She still will not go back. My daughter is 46 year old, but very childlike, and has virtually no understanding of the world. My daughter goes out on Tuesday with one provider for 4 hours, Wednesday morning with a group provider 1:2 support, for 6hrs, Wednesday night to a disco for 2½hours, Thursday for 3 hrs with a provider for her swimming and exercise at gym.

My daughter has travelled 2078km since January 2021 til September 2021. This is not even a whole years worth of transport, only 9 months. Do the maths, we are struggling to limit the km that provider can use.

We want to get NDIS to be real about the costs of travelling for disabled people to live the life they are entitled to live, especially in WA.

PTO.

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Concerns Regarding NDIS Funding Reduction

We have become very concerned about the NDIS slashing the funding for SIL for clients of NDIS. This borders on neglect from NDIS. You just can’t take away the necessary funding for homes to have the right staff ratio. We cannot afford to have staff missing because of funding, those severely limits the choice and control of residents in a home to be able to have the staff to help them. It is now affecting many providers, as they said they will have to relinquish some of their homes, as they don’t receive enough funding to provide staff. This off course affects the residents, who will become a state problem.

If you have 5 people in a home, that 5 people who needs showers, meds in the mornings getting everyone ready for the day. At anyone time in the morning, currently there are two staff for 5 people, if you remove or slash SIL for residents in that home, then who is going to miss out on their showers, and not be ready for other providers to take them out? During the later hours in the morning, there is only 1 staff member to maybe three residents. What happens when residents need to go the doctors…who’s going to take them and who will stay at home to look after those other residents on the day they don’t go out.

Please do not reduce SIL for those living in group homes, these are vital funds. These must be made available for those that are most vulnerable.