Submission 25 Head Office
Orange (08) 8373 8388 ABN 16 464 890 778 778 24 April 2026 Libby Coker MP
Chair of the Joint Standing Committee on the National Disability Insurance Scheme PO Box 6100 Parliament House Canberra ACT 2600 Email: ndis.joint@aph.gov.au
deeply concerned about this Inquiry.
Dear Chair, Re: Inquiry into the Integrity of the National Disability Insurance Scheme (NDIS)
We write to you regarding the Joint Standing Committee on the National Disability Insurance Scheme’s (NDIS) Inquiry into the Integrity of the NDIS. We acknowledge the tone of this letter may be somewhat blunt, but this reflects the level of despair among many in the disability community who are undeservedly bearing the brunt of a highly politicised attack on the NDIS. The NDIS was and remains a fundamentally sound policy initiative and a very good Scheme for all Australians — mistakes of successive ministers, governments, and parliaments regarding its implementation do not change this.
The focus of this Inquiry overlaps with the current Joint Committee of Public Accounts and Audit’s Inquiry into the Administration of the NDIS. These inquiries are in addition to the annual inquiry of the NDIS Committee, which is also ongoing and covers the same topics, among others. Given the significant focus on the effective use of public resources within the NDIS that is implicit in all of these, we note that holding multiple simultaneous inquiries covering similar matters, rather than a single streamlined and comprehensive process, seems wasteful. Broadly, the demands placed on the disability sector and community to repeatedly respond to poorly framed, overlapping, and duplicated consultation processes are unreasonable, and will not result in the provision of the highest quality evidence due to overstretched capacity. Indeed, the current disjointed approach of the government and parliament to dealing with NDIS matters is unsustainable for the disability sector and community, and not a purposeful way to undertake reform processes or to use public resources.
purpleorange.org.au Inform. Connect. Influence.
Additionally, we continue to be deeply concerned about the politicisation of the NDIS and,
especially, of the lives of Australians with disability. This is extremely harmful. We emphasise,
again, that successive ministers, governments, and parliaments are responsible for failings in the
Scheme – not NDIS participants who have no control over policymaking but endure the greatest
consequences. Recent political and media commentary that the NDIS is losing its ‘social license’
is cited as a justification for cutting the Scheme, yet it is politicians and the media who are largely
responsible for creating this negative public sentiment. The NDIS has now been under reform for
more than half of the time it has existed with little improvement to show for it. As Minister for the
NDIS Mark Butler acknowledged at the National Press Club on 22 April 2026, the recent ad hoc
changes to the Scheme have not contributed in any substantive way to improving its quality,
safety, or sustainability. This should ring alarm bells about continuing to approach the process of
reform in this way.
Instead, we strongly believe the best path forward is for the Federal Government to adopt a
genuine comprehensive co-design process that includes lived experience and subject matter
expertise in decision making, implementation, and evaluation to ensure the NDIS is fit-for-
purpose now and into the future. So far, what has been called co-design has, in fact, been
piecemeal consultations with ineffective outcomes resulting in a drawn-out period of upheaval in
the Scheme and in the lives of participants. Anecdotal evidence suggests individual NDIS plans
have recently been cut in random and inconsistent ways to meet an arbitrary cost saving
percentage without any coherent or transparent framework for decision making or the delivery of
high-quality disability supports. Now, Minister Butler has announced cuts to budgets in individual
plans, effective this year, and to how many people with disability will be able to access the NDIS
from 2028, seemingly as a substitute to doing the hard work of genuine policy evaluation and
reform in partnership with Australians with disability. To be clear, the disability sector and
community has sought to partner with governments and to work together on sensible reforms for
many years but these calls for a genuine comprehensive co-design process have been rebuffed.
This is despite the fact that creating a high-quality NDIS that delivers high-quality disability
supports will result in a cheaper, more sustainable Scheme. In his Press Club address, Minister
Butler repeatedly named poor quality support and safety issues as problems but offered no
solutions to specifically address these; only cuts.
Ideally, JFA Purple Orange would like to provide a new submission to this Inquiry, however,
considering our resource constraints, we simply cannot do so at the current time. Therefore, we
provide your Inquiry with our submission to the concurrent Inquiry into the Administration of the
NDIS, which covers very similar and relevant topics. We have lodged 10 NDIS-related
submissions to various committees and government agencies in just the past six months. On the
purpleorange.org.au Inform. Connect. Influence.
specific question of provider registration, which this Inquiry includes, this is the eighth time our
input has been sought, by seven different entities, over three years. It is not clear to us that this
work was even considered before Minister Butler’s announcement of large cuts. Again, we
reiterate that a genuine comprehensive co-design process would be a more effective
allocation of resources than the previously disjointed, now unilateral, approach to reforms, and
will have a much higher chance of achieving successful outcomes.
It would also assist in halting the significant decline in trust and confidence in government,
parliament, and politicians that has been occurring across the Australian community due to poor
policymaking, implementation, and oversight over many years, followed now by Minister Butler’s
announcement of cuts with very little detail to justify or explain them. Giving lip service to positive
sentiments about the origins of the NDIS while making decisions that undermine the Scheme’s
original promise, including that it would respond to need and not be subject to arbitrary caps, only
adds to this concern. The result is that trust and confidence have been decimated while
uncertainty, anxiety, and fear in the disability community have surged. This, too, is extremely
harmful.
Please find attached a copy of our submission to the Joint Committee of Public Accounts and
Audit regarding its Inquiry into the Administration of the NDIS, which will be useful to inform this
Inquiry. Notwithstanding our limited resources to provide a bespoke submission, **we request the
opportunity to appear at a hearing to expand on the content of this submission and to
address Minister Butler’s just announced future agenda.** To arrange this, could Committee
staff please contact redacted, Manager – Policy and Projects, JFA Purple Orange, on
redacted or redacted.
Yours sincerely
redacted
Belle Owen
Interim Strategy Lead
JFA Purple Orange
purpleorange.org.au Inform. Connect. Influence.
Submission to the Joint Committee of
Public Accounts and Audit regarding
the Inquiry into the administration of
the National Disability Insurance
Scheme (NDIS)
February 2026
About the Submitter
JFA Purple Orange is an independent, social-profit organisation that undertakes systemic policy
analysis and advocacy across a range of issues affecting people with disability and their
families.
Our work is characterised by co-design and co-production, and includes hosting a number of
user-led initiatives.
Much of our work involves connecting people with disability to good information and to each
other. We also work extensively in multi-stakeholder consultation and collaboration, especially
around policy and practice that helps ensure people with disability are welcomed as valued
members of the mainstream community.
Our work is informed by a model called Citizenhood.
JFA Purple Orange
104 Greenhill Road
Unley SA 5061 AUSTRALIA
Telephone: +61 (8) 8373 8388
Email: admin@purpleorange.org.au
Website: www.purpleorange.org.au
Facebook: www.facebook.com/jfapurpleorange
Contributors
Cathy Cochrane, Senior Policy Leader
James Murphy, Policy and Research Leader
Selena Maddeford, Manager – Policy and Projects
Tracey Wallace, Interim CEO
© 2026 Julia Farr Association Inc.
2
Acknowledgment of Country
JFA Purple Orange acknowledges the Traditional Owners of Country throughout Australia. We
work on many Aboriginal lands, including Kaurna Country, where our head office is located. We
extend our respect to all Aboriginal peoples on the lands where we work, live, and learn. We are
committed to walking together and building relationships grounded in the self-determination of
First Nations peoples.
Recognition of disability community
We recognise that JFA Purple Orange exists to advance the rights of people with disability. All
our work aims to create a more inclusive world where people with disability have access to the
same opportunities as everyone else.
3
Contents
-
Summary and recommendations ……………………………………………………………….. 5
-
Introduction …………………………………………………………………………………………… 10
2.1. Problematic scope of this Inquiry ……………………………………………………….. 12
- Foundations of NDIS critical to inform its future …………………………………………. 13
3.1. Original promise still holds true ………………………………………………………….. 13
3.2. The Social Model of Disability ……………………………………………………………. 14
3.3. Inclusion is not segregation ………………………………………………………………. 15
- Missteps in NDIS implementation …………………………………………………………….. 18
5.1. Scheme forecasts overlooked significant unmet need ………………………….. 18
5.2. Poor performance of NDIA Board ………………………………………………………. 19
5.2.1. Insufficient Board oversight of quality outcomes ................................... 20
5.2.2. Insufficient Board oversight of Scheme sustainability ........................... 22
5.2.3. Insufficient Board oversight of systems and processes ........................ 24
5.2.4. Balancing multiple Board roles .............................................................. 27
5.2.5. Increase Board transparency ................................................................ 27
5.3. Missing Tier 2 ………………………………………………………………………………….. 28
5.4. Issues that hamper ILC success ………………………………………………………… 30
- A new way forward for the NDIS………………………………………………………………. 32
6.1. Genuine co-design is critical ……………………………………………………….. 32
6.2. Place accountability at the core …………………………………………………………. 33
6.3. Establish clear roles without conflicts …………………………………………. 34
6.4. Let participants author their own plans …………………………………………. 36
6.5. Apply clear principles on what supports can be purchased …………….. 37
6.6. Balance natural and formal safeguards …………………………………………. 39
- Conclusion ……………………………………………………………………………………………. 41
4
1. Summary and recommendations
This submission acknowledges that there have been a range of mistakes and problems created
in the way successive governments have rolled out and managed the National Disability
Insurance Scheme (NDIS) and these have unnecessarily increased the cost of the Scheme. But
we cannot emphasise strongly enough that poor implementation does not turn a good idea into
a bad one. The NDIS was, and remains, a fundamentally good idea that should be defended
and strengthened to ensure it delivers its original promise. Our collective focus should be on
fixing the problems and building a stronger Scheme that delivers higher quality supports and
better outcomes for participants while being cost-effective and sustainable for taxpayers and
society.
Our submission is presented in three parts. First, we urge the Committee to reflect on the
origins of the NDIS and its core tenets of dignity and inclusion for Australians with disability.
Understanding the origins and the path the NDIS has taken to date is crucial to charting a better
course forward that holds true to the fundamental essence of the Scheme while protecting it for
future generations. The Social Model of Disability should underpin this with the recent
regression to the outdated tropes of the Medical and Charity models firmly rejected. The NDIS
is an insurance scheme for the benefit of all Australians and not a ‘welfare’ measure or a ‘care’
system. Importantly, inclusion does not mean segregation or ‘special’ provisions, which are
inevitably more expensive because they fail to leverage existing resources in our communities.
Second, we highlight some of the missteps in the implementation that have negatively impacted
the Scheme’s roll out and increased costs. We note that the initial modelling for the NDIS was
problematic due to underestimating the level of unmet need at the time and a reliance on known
costs that were largely associated with outdated models. This has resulted in an unrealistic
benchmark and misconceptions about the reasonable costs of the Scheme. The NDIA Board
has also fallen short of its responsibilities in ensuring the Scheme fulfils its legislated functions
and in not providing sufficient oversight. The Committee should examine how the Board failed to
ensure the NDIA had fit-for-purpose processes and systems that identified, prevented, and
remedied issues of waste, misuse, and fraud over many years. Further, all levels of government
have failed to deliver what the Productivity Commission envisaged as Tier 2 supports. While this
is now broadly acknowledged, it has until now had a significant impact on driving demand for
individual NDIS plans and thereby increasing costs. Well-designed and comprehensive
Foundational Supports should help overcome this in the future.
5
The final section focuses on the future of the NDIS. We strongly believe the Federal
Government should establish an overarching genuine co-design process that involves people
with disability and subject matter experts in decision making about sensible reforms.
Additionally, we offer a few ideas that we believe should be considered in this co-design
process, including the need for increased focus on accountability, establishing clear roles in the
Scheme and eliminating conflicts of interest, letting participants ‘author’ their own plans
according to their assessed budget as part of a simplified participant pathway that eliminates
line-by-line adversarial negotiations, applying clear principles to determine the supports that can
be purchased, and investing in creating cost-effective natural informal safeguards for
participants alongside stronger formal oversight mechanisms.
We recommend:
Recommendation 1: The Joint Committee of Public Accounts and Audit should expand
its Terms of Reference to include the impact of political actors, especially ministers, on
the administration of the National Disability Insurance Scheme (NDIS) and its
performance regarding the quality of supports provided to participants, outcomes
achieved, mitigation of Scheme risks, and management of financial sustainability.
Recommendation 2: The Joint Committee of Public Accounts and Audit should reflect on
the content of the landmark ‘Shut Out’ report and its core tenants of dignity and
inclusion in considering how the National Disability Insurance Scheme (NDIS) has been
rolled out and managed, including how unnecessarily rigid rules have both failed to
adhere to these values and often led to more expensive supports than necessary.
Recommendation 3: The Joint Committee of Public Accounts and Audit should ensure
this Inquiry adopts the Social Model of Disability and avoids deferring to outdated
understandings of disability based on the Medical and/or Charity Models of Disability.
Likewise, the Committee should emphasise that the future course of the National
Disability Insurance Scheme (NDIS) should be based on the Social Model of Disability
and not a regression to outdated approaches and systems.
Recommendation 4: The Joint Committee of Public Accounts and Audit should examine
the consequences of practices and policies of discrimination, segregation, and exclusion
under the National Disability Insurance Scheme (NDIS) including their immediate and
long-term cost implications. It should make recommendations about ending
discrimination, segregation, and exclusion in the NDIS as part of building a higher-
quality, more cost-effective, and, ultimately, more sustainable Scheme.
6
Recommendation 5: The Joint Committee of Public Accounts and Audit should recognise
how flaws in the assumptions underpinning the Productivity Commission’s 2011
modelling of projected NDIS costs, largely due to underestimating the level of unmet
need at the time and a reliance on known costs that were largely associated with
outdated models, have resulted in an unrealistic benchmark and misconceptions about
the reasonable costs of the Scheme. It should consider and make a recommendation
about how a new realistic benchmark can be modelled.
Recommendation 6: The Joint Committee of Public Accounts and Audit should examine
how, and to what extent, the NDIA Board currently assures itself the National Disability
Insurance Agency (NDIA) is fulfilling its legislated functions in ways that are fully
consistent with the National Disability Insurance Scheme Act 2013.
Recommendation 7: The Joint Committee of Public Accounts and Audit should examine
how, and to what extent, the NDIA Board currently assures itself about the reliability of
data and financial projections it receives and make recommendations to address the
apparent shortcomings to protect the future of the National Disability Insurance Scheme
(NDIS) for all Australians.
Recommendation 8: The Joint Committee of Public Accounts and Audit should closely
examine the role of the Board in the apparent failure of the National Disability Insurance
Agency (NDIA) over many years to identify and fix inadequate systems and processes
resulting in extremely high levels of waste, fraud, and financial leakage from the NDIS. It
should make recommendations to improve the Board’s identification and mitigation of
risks within the Agency and Scheme.
Recommendation 9: The Joint Committee of Public Accounts and Audit should ensure its
recommendations reflect a clear balance between the multiple roles of the National
Disability Insurance Agency (NDIA) Board and give equal weight to matters of financial
sustainability and the quality of participant outcomes capable of advancing the life
chances of participants, which reduces costs over the long term.
Recommendation 10: The Joint Committee of Public Accounts and Audit should consider
and make recommendations about how the National Disability Insurance Agency (NDIA)
Board can increase the level of public transparency regarding its work and deliberations
to help ensure public confidence in its role is maintained and enhanced.
Recommendation 11: The Joint Committee of Public Accounts and Audit should consider
how an additional public disclosure requirement could be added to Section 145 of the
National Disability Insurance Scheme Act 2013 so that advice from the Independent
7
Advisory Council to the National Disability Insurance Agency (NDIA) Board is made
available publicly.
Recommendation 12: The Joint Committee of Public Accounts and Audit should
recommend the Federal Government establishes a genuine co-design process involving
lived experience and subject matter experts in decision making to develop, trial, adjust,
roll out, and evaluate Foundational Supports, including Thriving Kids, because this
approach offers the best chance of success. The sustainability of the National Disability
Insurance Scheme (NDIS) will be significantly enhanced if Foundational Supports are
well designed and effectively rolled out through a constructive partnership with the
disability community.
Recommendation 13: The Joint Committee of Public Accounts and Audit should consider
how the Information, Linkages, and Capacity Building (ILC) program can be strengthened
into the future, including, but not limited to, an increased funding allocation, financial
certainty for organisations, and a clear overarching public-facing strategy. The
Committee should also seek to understand why organisations with ILC-funded projects
are facing an unknown future come 30 June 2026 – for the third year in a row – and make
recommendations to avoid any recurrence of this issue in the future.
Recommendation 14: The Joint Committee of Public Accounts and Audit should consider
the many benefits of establishing genuine co-design processes involving lived
experience and subject matter experts in decision making for the success of reform
processes and make a clear recommendation that the Federal Government adopt this
approach regarding the National Disability Insurance Scheme (NDIS) and Foundational
Supports.
Recommendation 15: The Joint Committee of Public Accounts and Audit should
recommend ways to rebuild trust between the Federal Government, including its
agencies, and the disability community with a focus on working together to achieve
better outcomes for the quality and sustainability of the National Disability Insurance
Scheme (NDIS).
Recommendation 16: The Joint Committee of Public Accounts and Audit should examine
the adequacy of oversight and accountability mechanisms in the National Disability
Insurance Scheme (NDIS) and make recommendations to ensure these are placed at the
core of the Scheme.
Recommendation 17: The Joint Committee of Public Accounts and Audit should
recommend a recalibration of key roles and responsibilities in the National Disability
8
Insurance Scheme (NDIS), including, but not limited to, the roles of Local Area
Coordinators (LACs), NDIA planners, support coordinators, and plan managers in order
to make the Scheme more cost-effective and sustainable.
Recommendation 18: The Joint Committee of Public Accounts and Audit should examine
the complex and expensive participant pathway currently operating in the National
Disability Insurance Scheme (NDIS) and recommend participants ‘author’ their own plans
based on their assessed budget with available support from their Local Area Coordinator
(LAC), who is trained in best-practice supported decision making.
Recommendation 19: The Joint Committee of Public Accounts and Audit should examine
the complex, adversarial, and expensive process for approving supports in NDIS plans
through the current lists approach and make recommendations to simplify the rules and
replace the lists with clear principles that encourage innovative and lower-cost solutions.
Recommendation 20: The Joint Committee of Public Accounts and Audit should
recognise the cost-effectiveness of informal natural safeguards for people with disability
living in inclusive neighbourhoods and communities and consider ways these can be
enhanced alongside adequate investment in strong formal oversight and accountability
mechanisms.
9
2. Introduction
JFA Purple Orange welcomes the opportunity to provide this submission to the Joint Committee
of Public Accounts and Audit regarding its inquiry into the administration of the National
Disability Insurance Scheme (NDIS).
We understand the Committee is examining the National Disability Insurance Agency’s (NDIA)
delivery of the NDIS with reference to the management of financial sustainability risks, and
claimant and provider compliance with requirements; as well as the monitoring, measurement,
and reporting of NDIA performance. Further, the Committee will also examine the regulatory
performance of the NDIS Quality and Safeguards Commission (NDIS Commission), and the
Department of Health, Disability, and Ageing’s policy advice to the government. We note that
this Department was only constituted in its current form last year with the Department of Social
Services taking the lead policy advice role for disability and the NDIS prior to this.
JFA Purple Orange acknowledges there have been a range of mistakes and problems created
in the way successive governments have rolled out and managed the NDIS and these have
unnecessarily increased the cost of the Scheme. But we cannot emphasise strongly enough
that poor implementation does not turn a good idea into a bad one. The NDIS was and
remains a fundamentally good idea that should be defended and strengthened to ensure
it delivers its original promise. Our collective focus should be on fixing the problems and
building a stronger Scheme that delivers higher quality supports and better outcomes. Winding
back or dismantling parts of the NDIS now would discard the enormous value already created
from the investment so far. A full or partial return to block funding will bring new and different
expenses with little evidence to suggest it will be cheaper over the long term. The primary
reason that these types of service provisions seemed cheaper prior to the NDIS is because
there was so much unmet need and poor service quality.
We despair at characterisations that suggest there is a single choice between a ‘free-market
free-for-all’ or a rigid, government-controlled, block-funded, one-size-fits-all service provision.
We believe there is a credible middle path that can deliver high-quality outcomes for participants
who have genuine choice and autonomy to live good ordinary lives while ensuring the financial
sustainability of the Scheme. Clear straightforward processes, fit-for-purpose oversight
mechanisms, and strong accountability are critical to this middle path; all of which have been
lacking in the NDIS to date. We implore all members of this Committee, and parliament more
broadly, to work together, and alongside the disability community, to improve the NDIS and
10
ensure it fulfills its promise to enable Australians with disability to live valued meaningful lives in
our communities – something that enriches all of us.
Compounding successive governments’ poor implementation of the NDIS has been the chaotic,
disjointed, and often inept way they have also sought to run various ‘reform’ processes. Despite
commitments to genuinely co-design changes to the Scheme, people with disability have largely
been sidelined with governments and ministers taking charge, then failing to match their rhetoric
with results. The NDIS has now been under ‘reform’ for more than half its 12-and-a-half-year
lifespan, kicked off by Stuart Robert when he assumed the role of Minister for the NDIS on 29
May 2019 and carried forward by ministers Linda Reynolds, Bill Shorten, Amanda Rishworth,
and Mark Butler. The disability community and broader Australian public can be forgiven for
wondering why the experiences and outcomes for participants seem to be getting worse and the
political rhetoric about cost overruns continues into its tenth year.1
In our view, this is because the approaches taken to ‘reform’ so far have not worked as well as
they should have, and we respectfully argue it is well past time to adopt a genuine
comprehensive co-design process that includes lived experience and subject matter expertise in
decision making, implementation, and evaluation to ensure the NDIS is fit-for-purpose now and
into the future. The co-design that has occurred in recent years has been on specific matters
and in piecemeal ways – there has not been a comprehensive, cohesive, overarching co-design
approach for the whole Scheme. It is people with disability and their families who have the most
experience of the Scheme’s benefits and problems, the deepest understanding of how it
currently works, and the greatest stake in its success. They should be trusted to help lead,
design, and deliver the sensible changes that are needed to create a high-quality sustainable
Scheme that achieves its original promise.
Our submission is presented in three parts. First, we focus on the foundations of the NDIS and
why it came into being. Understanding the origins and the path taken to date is crucial to
charting a better course forward that holds true to the fundamental essence of the Scheme.
Then we address problems with implementation. Third, we look forward, emphasising that a
genuine co-design process offers the best chance of delivering sensible change that improve
the quality and sustainability of the NDIS. We also offer a few ideas that we believe would help
strengthen the Scheme and save money, which should be considered in that co-design
process. Our submission is informed by feedback we have received from people with disability,
1 On 20 January 2017, then Treasurer Scott Morrison asked the Productivity Commission to undertake a study of NDIS costs. See further Productivity Commission, ‘National Disability Insurance Scheme (NDIS) Costs: Study Report’, October 2017, available at https://assets.pc.gov.au/inquiries/completed/ndis-costs/report/ndis-costs.pdf.
11
families, and other stakeholders about their experiences and we acknowledge the ongoing and
valuable contributions that the South Australian disability community makes to our work.
2.1. Problematic scope of this Inquiry
While the scope of this Inquiry is comprehensive in relation to the public service’s roles in the
administration of the NDIS, it excludes political actors who have had a significant impact on how
well the NDIS has been implemented and managed, as well as the conduct of subsequent
‘reform’ processes, as described above. The roles of successive governments – predominately
federal but also state and territory governments – and their ministers should not be overlooked.
Additionally, many previous parliamentary committees have examined a smorgasbord of
matters related to the NDIS over a dozen years, yet they have seemingly been unable to direct
governments to solutions that would have prevented the problems that many now use to argue
the NDIS has failed.
We are very concerned that the narrow scope of this Inquiry may hamper its ability to accurately
pinpoint the root causes of many issues and, therefore, their solutions. Instead, it enables
current and former politicians to avoid their share of scrutiny while only placing the public
service under the microscope. We strongly urge the Committee to expand its scrutiny to include
all actors who have significantly impacted the administration of the NDIS, especially ministers.
Otherwise, there is a risk that policy design flaws are overlooked with the focus only on day-to-
day operations, or of a perception forming that the public service is being ‘scapegoated’ for
broader government failings.
Recommendation 1: The Joint Committee of Public Accounts and Audit should expand
its Terms of Reference to include the impact of political actors, especially ministers, on
the administration of the National Disability Insurance Scheme (NDIS) and its
performance regarding the quality of supports provided to participants, outcomes
achieved, mitigation of Scheme risks, and management of financial sustainability.
12
3. Foundations of NDIS critical to inform its future
Understanding the origins of the NDIS and the path taken to date is crucial to charting a better
course forward that holds true to the fundamental essence of the Scheme. In this section, we
highlight some of the core foundations of the NDIS that we believe should inform how the
Committee undertakes its work and the recommendations it makes. We emphasise the
groundbreaking work of the ‘Shut Out’ report in encapsulating the need for change away from
the outdated approaches of the past, and the importance of the Committee’s work reflecting the
Social Model of Disability and that segregated models have no place in a genuinely inclusive
society.
3.1. Original promise still holds true
The NDIS has many ‘parents’ and ‘grandparents’, but, in our view, the landmark ‘Shut Out’
report released in 2009 best encapsulates why the Scheme is needed and the essence of what
it should achieve. We implore each member of this Committee to take the time to read and
reflect on the content of this report and its call for fundamental change. Its core tenets of dignity
and inclusion for all Australians with disability should underpin the work of this Inquiry. We do
not suggest that the NDIS has, to date, done justice to the change the report called for, but we
strongly believe this should continue to motivate and guide how the Scheme evolves into the
future. As a person with disability shared in a submission to the ‘Shut Out’ report team:
We desire a place within the community! This place is not just somewhere to lay
down our heads, but a place which brings comfort and support with daily living,
friendship, meaningful work, exciting recreation, spiritual renewal, relationships in
which we can be ourselves freely with others. And out of this, great things may
flourish… Perhaps then we will belong and our gifts (perhaps meagre, perhaps
spectacular) freely shared. And from there will flow all the delights and tragedies
of a life lived in the community, shaped not by exclusion and oppression but by
everyday ordinariness (whatever that might be)!2
The NDIS has sought to achieve these core tenets of dignity and inclusion through a
commitment to reasonable and necessary supports based on choice and a goal of advancing
participants into meaningful social, economic, cultural, and community participation. Yet, we
2 Australian Government, ‘Shut Out: The Experience of People with Disabilities and their Families in Australia’, 2009, p. viii, available at https://disability.royalcommission.gov.au/system/files/exhibit/DRC.1000.0001.0001.pdf.
13
have seen numerous examples of the NDIA failing to properly uphold these, even when doing
so would be much cheaper. One example is the requirement for supports to be ‘disability
specific’, which undermines the goal of social participation and genuine community inclusion.
For example, when participants request support to participate in mainstream community-based
art or music activities, this has been rejected because they are not considered to be a disability-
specific support. Anecdotally, Local Area Coordinators (LACs) and NDIA planners have then
suggested to many participants that more expensive art and music therapies would be an
alternative way to fund these activities because they are deemed disability-specific and within
the rules. Other participants have then followed this lead and also sought funding for art and
music therapies for non-therapeutic reasons. This approach is failing to achieve the goal of
community participation and has directed many participants into more expensive supports than
they were seeking. It is but one example of how rigid rules have led to poorer participant
outcomes from more expensive supports.
Recommendation 2: The Joint Committee of Public Accounts and Audit should reflect on
the content of the landmark ‘Shut Out’ report and its core tenants of dignity and
inclusion in considering how the National Disability Insurance Scheme (NDIS) has been
rolled out and managed, including how unnecessarily rigid rules have both failed to
adhere to these values and often led to more expensive supports than necessary.
3.2. The Social Model of Disability
The NDIS has long suffered from the mischaracterisation of it as a ‘welfare’ measure. Now, with
responsibility for the NDIS moved to the Department and Minister for Health, there is an equally
concerning pattern of mischaracterising the Scheme as a ‘care’ system and viewing disability as
a ‘problem’ to be ‘fixed’ rather than an ordinary part of human diversity. This is in line with the
outdated Medical and Charity Models of Disability rather than the contemporary Social Model of
Disability. To be clear, the NDIS is an insurance scheme, and it is intended to provide a broad
range of supports that enable Australians with disability to take up their rightful place as equal,
included, and contributing citizens with the same opportunities to pursue their interests and
reach their full potential as all others. As the Social Model of Disability makes clear, people with
disability are not ‘damaged’ or inherently ‘vulnerable’ and in need of others’ care and charity.
Instead, disability arises from the widespread barriers that exist in a world not designed to
include everyone. These barriers may be physical, systemic, social, communicational, or
attitudinal and should be the primary target of change and reform. It is essential Committee
14
members undertake this Inquiry in line with the Social Model of Disability and avoid deferring to
outdated understandings of disability based on the Medical and Charity Models of Disability.
At JFA Purple Orange, we characterise the benefits of the NDIS to individuals in two broad
categories: transactional and transformational. To understand the difference, we consider the
nature of the consequences of disability. First, there are consequences that impact on daily life
that result in the need for practical supports, such as for toileting, that reoccur over time. These
are transactional benefits. Second, there are consequences that impact on life chances that
require supports designed to create permanent positive change, for example speech therapy,
that will enable the pursuit of life goals. These are transformational benefits. While it may,
broadly speaking, be possible to characterise transactional benefits as part of a system of ‘care’
(although not recommended), this terminology is wholly inadequate in describing what the NDIS
was designed to achieve. Hence, our reiteration that the NDIS is an insurance scheme
designed to deliver transformative benefits in the lives of people with disability, which reflects
the fact that any Australian could acquire a disability at any stage of life and benefit from these
supports to enable them to live a good ordinary life in their community. For more information
about transactional and transformational benefits, we urge Committee members to engage with
the papers in our NDIS Review Conversation Series,3 which are available here.
Recommendation 3: The Joint Committee of Public Accounts and Audit should ensure
this Inquiry adopts the Social Model of Disability and avoids deferring to outdated
understandings of disability based on the Medical and/or Charity Models of Disability.
Likewise, the Committee should emphasise that the future course of the National
Disability Insurance Scheme (NDIS) should be based on the Social Model of Disability
and not a regression to outdated approaches and systems.
3.3. Inclusion is not segregation
Further to the above discussion about the importance of dignity and inclusion to the NDIS, it is
essential to underscore what these are not: dignity and inclusion are not any form of
segregation or separate ‘special’ settings and programs. ‘Special’ provisions are inherently
more expensive than making mainstream settings and programs work for everyone and,
therefore, they undermine the sustainability of the NDIS. The NDIS should be part of a broader
strategy to end the segregation of people with disability in any setting, including in housing,
3 JFA Purple Orange, ‘NDIS Conversation Series’, 2023, available at https://purpleorange.org.au/news- resources/ndis-conversation-series.
15
education, and employment. Segregated and congregated services will not advance people with
disability into meaningful contributing lives in community in the way well-orchestrated inclusive
alternatives do. Separate ‘special’ disability-focused services, programs, and settings reinforce
a community perception that people with disability are best served by having separate ‘special’
stuff. This has been termed ‘othering’.
The broader context here is important. The progress Australia has made toward
deinstitutionalisation has unfortunately not resulted in an end to the segregation of children or
adults with disability. Indeed, in numerous instances, it has simply heralded the creation of new
forms of exclusion, marginalisation, and inequality in Australia, particularly in housing,
education, and employment. Children and adults with intellectual disability and those with
multiple or complex disabilities or high support needs are more likely to be funnelled into
segregated and congregated settings and services. These settings are highly institutionalised in
their character, and this has serious impacts on the quality of life for those relegated to these
offerings. They have significant impacts on each person’s quality of life and the opportunities
available to them as they move through life stages – from infancy to childhood to adolescence
to adulthood to older age.
The findings from the Disability Royal Commission (DRC) offer a compelling argument in terms
of understanding why people are drawn into segregated disability-specific settings. The Final
Report recognises that people with disability and their families are systematically taught there
are no safe or viable mainstream options, forcing them to access segregated settings,
something that can be described as ‘coercive choice’.4 Often, people with intellectual disability
are funnelled from ‘special schools into a sheltered workshop, known as an Australian Disability
Enterprise (ADE) and a group house; a trajectory that Catherine McAlpine, CEO of Inclusion
Australia, calls ‘The Polished Pathway’.5 Not only does this Pathway severely limit a person’s
opportunities and prospects for taking up meaningful valued roles in our communities, it
perpetuates underlying messages that people with disability do not belong in community, are
lesser or defective, and it is okay to devalue people and treat them as second-class citizens.
These messages are deeply entrenched in society and are a consequence of the legacy of
institutionalisation and ongoing policies and practices of segregation.
It is in this broader context, and because of this context, that people with disability and their
families are forced to turn to segregated disability-specific settings and services. When
4 Disability Royal Commission, ‘Final Report, Volume 7: Inclusive education, employment, and housing - Summary and recommendations’, 2023, p.65, available at https://disability.royalcommission.gov.au/publications/final-report. 5 See, for example, Catherine McAlpine’s speech to the NDIS Jobs and Skills Summit on 17 August 2022, at https://www.inclusionaustralia.org.au/wp-content/uploads/2022/10/The-Polished-Pathway-Final.pdf.
16
mainstream options continue to operate in ways that are inaccessible, exclusionary, and/or
discriminatory, these options are taken away. People become exhausted and disillusioned by
repeated poor and unsafe experiences and begin to perceive segregated options as ‘easier’ to
deal with. It cannot be left to the disability community alone to shoulder the responsibility to
change this reality. It requires all levels of government – and Committees like this one – to take
a strong position against disingenuous claims, particularly those of sector lobbyists with vested
interests, that segregated options can constitute ‘choice’. ‘Choices’ made in a context where
safe, high-quality, and inclusive alternatives are not available are not genuine choices.
Notwithstanding this, it is important to note that people with disability can and do have positive
meaningful relationships with their peers who also have disability. These relationships do not
constitute segregation or congregation and are not an excuse for such policies and practices.
We fully support the funding of peer networks, associations, and similar, and emphasise the
value of these opportunities in the lives of people with disability. There is a clear distinction
between funnelling people into segregated disability-specific settings in the absence of any
ordinary alternatives being available, compared to the availability of peer networks and spaces
led by and for people with disability. The latter is generally a freely chosen association that can
exist among a smorgasbord of options and form only one aspect of a person’s life, as opposed
to being shut out of community altogether as a consequence of segregation. Many families with
various cultural heritages gather for positive community fellowship without being restricted to
only living, learning, and working with people who share that particular characteristic in
segregated settings – such an approach would rightly appal most Australians. Peer networks
and similar provide genuine opportunities to develop freely given meaningful connections and
facilitate a sense of identity, belonging, value, and respect. They support the growth and mutual
support that leads to self- and group-advocacy to enable positive life experiences. However,
they should also never detract from full and meaningful inclusion in mainstream community life.
Recommendation 4: The Joint Committee of Public Accounts and Audit should examine
the consequences of practices and policies of discrimination, segregation, and exclusion
under the National Disability Insurance Scheme (NDIS) including their immediate and
long-term cost implications. It should make recommendations about ending
discrimination, segregation, and exclusion in the NDIS as part of building a higher-
quality, more cost-effective, and, ultimately, more sustainable Scheme.
17
5. Missteps in NDIS implementation
We now turn to some of the problems that have undermined the implementation of the NDIS
resulting in lower quality supports for participants, poor management of risks and reduced
sustainability. As we have already acknowledged, there have been many mistakes and
problems created in the way successive governments have rolled out and managed the NDIS,
and these have increased the cost of the Scheme. Poor implementation of the NDIS does not
mean the Scheme is a bad idea or should be wound back in any way. Instead, it means the
focus should be on working together to make sensible changes that will improve the quality and
sustainability of the Scheme. Below, we raise some of the issues that have impacted the
implementation and administration of the Scheme.
5.1. Scheme forecasts overlooked significant unmet need
From the beginning, forecasts about the likely cost of the NDIS failed to properly account for the
high levels of unmet and unfunded need among both people who were receiving some support
within state government block-funded systems but not having their needs properly met, and
people who were excluded entirely, particularly those relying on family or other informal
supports. These inaccurate forecasts, particularly those in the 2011 report of the Productivity
Commission, have created a perception among some that the need that is now evident cannot
be ‘real’ because it was not predicted and, therefore, many people must be defrauding the
system. While we do not doubt there is some inappropriate claims and activities in the NDIS, in
large part the gap between predictions and reality is attributable to the inaccurate initial
understanding of the level of community need that was not being met. Throughout history,
people with disability have been segregated and excluded from communities and their needs
rendered invisible to government systems and data collection. Therefore, this modelling is a
problematic benchmark to continue to compare current and future costs of the Scheme to.
It would be very useful for the Committee to recognise this and make recommendations about
the credibility of continuing to refer to these predictions, as well as to consider the potential
opportunities to undertake a new, more robust, assessment of the current level of met and
unmet need in the Australian community. This should occur in line with today’s reasonable
community expectations of the level and quality of support required to live a good ordinary life
rather than against the bare minimum required for the shared, segregated, institutionalised,
block-funded services of the past. Arguably, the costs of the latter were too influential in the
original cost projections for the NDIS because it was all that was known at that time. Almost 15
18
years on from the Productivity Commission’s original modelling, there would be significant value
in independently modelling needs and realistic costs based on the information that is now
available.
Recommendation 5: The Joint Committee of Public Accounts and Audit should recognise
how flaws in the assumptions underpinning the Productivity Commission’s 2011
modelling of projected NDIS costs, largely due to underestimating the level of unmet
need at the time and a reliance on known costs that were largely associated with
outdated models, have resulted in an unrealistic benchmark and misconceptions about
the reasonable costs of the Scheme. It should consider and make a recommendation
about how a new realistic benchmark can be modelled.
5.2. Poor performance of NDIA Board
The NDIA Board oversees the work of the Agency and is one of the most important roles in the
administration of the NDIS. Yet this role has fallen well short of what has been needed and what
is reasonably expected of a Board. Rather than providing strong leadership and governance,
the Board has taken a backseat to Ministers and Agency executives. This has had significant
consequences for the cost of the NDIS. As the Committee will be aware, the main functions of
the Board are set out in Section 124 of the National Disability Insurance Scheme Act 2013 as
ensuring ‘proper, efficient and effective performance of the Agency’s functions’ and determining
‘objectives, strategies and policies to be followed by the Agency’. The Agency’s functions under
Section 118 of the Act include delivering the NDIS in a way that:
- Supports ‘the independence, and social and economic participation, of people with
disability’;
-
Enables ‘people with disability to exercise choice and control…’;
-
Ensures ‘the decisions and preferences of people with disability are respected and given
appropriate priority’;
- Promotes ‘the provision of high quality and innovative supports that … maximise
independent lifestyles and inclusion in the community’; and
- Ensures a ‘reasonable balance is achieved between safety and the right of people with
disability to choose to participate in activities involving risk’.
The current Board arrangements do not appear to be adequately fulfilling these governance
obligations or preventing the NDIA pursuing activities that are inconsistent with its legislated
functions. Currently, the voice of the Board seems to have a lower profile than the role
19
articulated in the Act. The following subsections of this submission, below, provide examples of
apparent insufficient Board oversight that we believe warrant close investigation in this Inquiry.
Importantly, our input is not a criticism of any individual Board members; rather, the focus of our
feedback is to reflect on how the current Board arrangements have not led the NDIA to deliver
the Scheme’s intended outcomes and financial stewardship, and to urge the Committee to seek
to understand why and make recommendations that will ensure this changes.
5.2.1. Insufficient Board oversight of quality outcomes
It is currently unclear how the Board assures itself that the NDIS is effectively, and to the
greatest extent possible, advancing people with disability into lives of independence and
genuine social and economic participation, per its legislated functions listed above. The same is
true of progressing individual choice and control. Likewise, it is unclear if or how the Board
seeks to understand the quality of provider supports or the extent of innovation in the market.
There is, however, significant evidence of the NDIA deploying practices, making decisions, and
measuring outcomes in ways that are contrary to fulfilling these legislated functions and we
describe a few instances below.
Board governance has not been strong enough to ensure the NDIS achieves transformational
outcomes for many participants. Instead, successive Boards have presided over a Scheme that
is highly transactional, where participants receive something rather than nothing, but the
‘something’ is often not the supports that will make a critical difference to their life chances. In
some instances, as mentioned earlier in this submission and explained further below, the less
impactful support that is provided in a plan is more expensive than the type of support that
would make a greater difference in a participant’s life. The Board does not appear to have
addressed this misalignment between plan decision making and NDIA functions in any
meaningful way.
Regarding advancing people into social and economic participation in the community, the NDIA
is known to make decisions to fund supports that are segregated from community rather than
those that are more likely to build connections and foster genuine inclusion. There continues to
be a default assumption in NDIA decision making about funding for home and living supports
that forces participants into group living arrangements not of their choice with quasi-block
funded Supported Independent Living (SIL) supports that prevent independent choice and
autonomy. In its governance role, the Board has not ensured the NDIA has pursued alternative
models of home and living support that would align more closely with NDIA functions. Nor has it
sought to test and challenge the imagined financial constraints of individual support and choice
20
through innovation. For example, it is hard to see any evidence of Board leadership in directing
the NDIA to purposefully advance Independent Living Options (ILO) as a core part of the
Scheme and as a critically important alternative to the group house model that is expensive,
inflationary, and does not deliver on Scheme values of choice inclusion.
As mentioned earlier, the NDIA has also shown a preference for costly one-to-one therapy with
a professional rather than cheaper mainstream community activities that are not regarded as
disability-specific supports despite the obvious perverse outcome this produces. This
unnecessarily directs people into therapy settings rather than genuine community participation.
In other words, it is costing more to deliver worse outcomes. This should raise concerns for the
Board not only in relation to effective outcomes but also the effective management of NDIS
resources and the prevention of waste. Further, the NDIA’s measurement of social participation
does not consider the nature or quality of participation, only the rate, therefore poor-quality
activities of ‘community tourism’, whereby a person is taken to a community setting but does not
actually participate in community life, are countered in social participation statistics as if they
constitute genuine social participation.
A similar picture emerges regarding economic participation, albeit with somewhat more reliable
data. According to the latest ‘NDIS Quarterly Report’, only 23 per cent of participants of working
age in the Scheme for at least two years had a paid job.6 This statistic has barely moved in eight
years from 22 per cent on 30 June 2018.7 There continues to be entrenched low expectations
for the employment outcomes of people with disability in Australia more broadly, with recent
data from the Australian Bureau of Statistics (ABS) counting only 60.5 per cent of people with
disability of working age as part of the labour force (working or available to work) compared to
84.9 per cent for people without disability.8 Addressing discrepancies like this was one of the
reasons the Productivity Commission recommended the establishment of a new national
disability scheme in its 2011 Report. Indeed, the assumed ‘significant economic and
employment effects’ of a scheme was a major element of how the Productivity Commission
justified its creation,9 hence the focus on economic participation in the legislated functions. This
6 National Disability Insurance Scheme, ‘NDIS Quarterly report to disability ministers’, 30 September 2025, available at https://www.ndis.gov.au/about-us/publications/quarterly-reports. 7 National Disability Insurance Agency, ‘Employment Outcomes: 30 June 2018 - NDIS participants, their families and carers’, p.23, available at https://dataresearch.ndis.gov.au/reports-and-analyses/outcomes-and- goals/employment-outcomes-participants-their-families-and-carers. 8 Australian Bureau of Statistics (ABS), Disability, Ageing, and Carers, Australia: Summary of Findings: 2022, released 4 July 2024, available at https://www.abs.gov.au/statistics/health/disability/disability-ageing-and-carers- australia-summary-findings/latest-release#disability. 9 Productivity Commission, ‘Disability Care and Support,’ Report no.54, 2011, p.960, available at https://www.pc.gov.au/inquiries/completed/disability-support/report.
21
increased economic participation was supposed to help offset the costs of the NDIS and make it
more sustainable, but this has not been given the required level of attention.
In addition to misaligned practices, decisions, and outcomes, the NDIA is also failing to deliver
participant outcomes commensurate with the level of expenditure in the Scheme, which now
approaches $50 billion per year. We would expect the Boad to have a stronger mandate to
direct the NDIA in achieving the transformational outcomes required by the legislated functions,
improve cost-effectiveness, and to have greater oversight of shortcomings in order to work with
the Agency’s executive leadership to rectify these. To this end, we urge the Committee to
examine what processes the Board undertakes and what information it seeks from the NDIA to
satisfy itself that the legislated functions of the Agency are being fulfilled purposefully and
effectively and are resulting in the participant outcomes required.
Recommendation 6: The Joint Committee of Public Accounts and Audit should examine
how, and to what extent, the NDIA Board currently assures itself the National Disability
Insurance Agency (NDIA) is fulfilling its legislated functions in ways that are fully
consistent with the National Disability Insurance Scheme Act 2013.
5.2.2. Insufficient Board oversight of Scheme sustainability
Subsection 4(17) of the Act also directly requires the Board, among others, to have ‘regard to
the need to ensure the financial sustainability’ of the NDIS. Again, it is unclear how the Board
assures itself of the sustainability of the Scheme or that the projections that the NDIA relies on
to anticipate costs are accurate. Instead, there is ample evidence to demonstrate a track record
of projections that do not materialise as expected. This problem was highlighted extensively in
the Australian Government Actuary’s ‘Independent Actuary Peer Review Report’10 of the
Scheme Actuary’s ‘Annual Financial Sustainability Report’ (AFSR)11 provided to the Board in
October 2023. We describe some of the issues below to demonstrate the questionable nature of
some of the information provided to the Board and the apparent failure of the Board to fully
scrutinise this, resulting in consequences for Scheme sustainability.
Among the Independent Actuary’s concerns are the differences between the projections and
outcomes on a number of key participant indicators related to sustainability: ‘Last year, new
10 Guy Thorburn, Australian Government Actuary, Independent Actuary Peer Review Report of the Annual Financial Sustainability Report 2022-23, 16 October 2024, available at https://www.ndis.gov.au/about- us/publications/annual-financial-sustainability-reports. 11 David Gifford, Scheme Actuary, National Disability Insurance Scheme, ‘Annual Financial Sustainability Report 2022-23’, available at https://www.ndis.gov.au/about-us/publications/annual-financial-sustainability-reports.
22
entrants were 22% higher than expected and exits, for reasons other than death, were 40%
lower than expected. The number of participants receiving SIL is now 12% higher than
expected.’12 Although only five per cent of participants receive SIL supports, their plans account
for 30 per cent of total funding in participant plans13 so any variation in projections related to
participants with SIL supports produces greater cost impacts for the Scheme. As described
above, SIL supports is one of the main areas where NDIA decision making is contrary to
legislated functions and inflating the cost of the Scheme.
Further, the Independent Actuary questioned the Scheme Actuary’s assumption that the
number of potential new entrants with ‘previously unmet need’ (PUN) is finite and will no longer
be a factor in projections after three years (by 2026):
There is a significant level of judgement behind the hypothesis that there will be
no new entrants with a PUN after three years. I have not received any analysis to
support this assumption. Defence Superannuation schemes have a similar cohort
of claimants. The analogous cohort in these schemes submit retrospective
invalidity claims. The past decade has seen the number of such claims increase
steadily, with some claims being made many decades after the incidence of the
disability. Previous assumptions that the numbers would reduce in the short term
have consistently proven to be wrong.14
Hence, the Independent Actuary found: ‘The uncertainty surrounding new entrant assumptions
and their assumed moderation is a key contributing factor to my conclusion that the Baseline
projection is more likely to understate, rather than overstate, future costs.’15
The Independent Actuary also raised similar concerns about the reliability of moderating growth
projections in recent Financial Sustainability Reports, concluding: ‘This moderation has so far
failed to materialise, and the projections have been increased each year since 2019.’16
Therefore, the Independent Actuary expressed concern that the current projection about
Scheme sustainability is also likely to be unreliable:
I believe that this projection faces a similar risk as all projections since 2019, that
is, that the assumed moderation does not materialise. Until the assumed
12 Guy Thorburn, Australian Government Actuary, Independent Actuary Peer Review Report of the Annual Financial Sustainability Report 2022-23, 16 October 2024, p.9, available at https://www.ndis.gov.au/about- us/publications/annual-financial-sustainability-reports. 13 Ibid, p.6. 14 Ibid, p.16. 15 Ibid, p.5. 16 Ibid, p.12.
23
moderating experience shows a greater presence in the data, there remains a risk
that the Baseline projection understates what might occur.17
Additionally, the Independent Actuary pointed out a significant gap between projected Agency
operational costs and current budget allocations per the forward estimates in the 2023-2024
Federal Budget: ‘projected operational expenses … are 37% higher than budgeted expenses in
2026-27. To the extent that forecast outcomes are dependent on agency resourcing in the
medium term, these differences will need to be reconciled.’18
Recognising the above sample of concerns raised in the independent peer review of the
projections relied upon to forecast moderations in future Scheme demand and costs, it would
appear the Board would be expected to have significant concerns – even alarm – about the
reliability of the information it is provided and the impacts this will have on the future of the
NDIS. There needs to much greater urgency in addressing the poor quality of data and
projections to ensure the future of the Scheme and its capacity to deliver high-quality outcomes
for participants is protected. Consequently, we urge the Committee to examine this very closely.
Recommendation 7: The Joint Committee of Public Accounts and Audit should examine
how, and to what extent, the NDIA Board currently assures itself about the reliability of
data and financial projections it receives and make recommendations to address the
apparent shortcomings to protect the future of the National Disability Insurance Scheme
(NDIS) for all Australians.
5.2.3. Insufficient Board oversight of systems and processes
As we are sure the Committee is aware, there has been significant political rhetoric and public
discourse about fraud in the NDIS. Of course, we share concerns about any misuse or
misconduct in the Scheme and wholeheartedly support actions against this. However, given the
degree to which NDIS cost increases are now attributed to fraud and other nefarious behaviour
within the Scheme, it seems prudent to question if and how the Board provided sufficient
oversight of the Scheme over the many years in which this problem apparently grew and
developed. A key part of the role of any Board is to ensure an entity is cognisant of all its risks
and ensure it is not exposed to high levels of fraud. Hence, we urge the Committee to consider
both the extent to which cost increases are genuinely linked to fraud rather than wasteful
17 Ibid. 18 Ibid, p.9.
24
systems that are not fit for purpose and, to the extent there is fraud, how the Board has
responded in order to prevent and remedy this.
One specific concern arises from the acknowledgement of ‘immature’19 systems and processes
within the NDIA. This raises an obvious question as to if and how the Board satisfied itself that
the Agency’s systems and processes were not exposing the Scheme to excessive risk over
many years. To this end, we draw the Committee’s attention to a range of statements made in
evidence to a Senate Estimates hearing in 2024. In doing so, we recognise that all systems,
including those of governments, are at a level of risk in terms of being targeted for fraud. The
question we pose is whether the Board’s risk identification process was sufficient in recognising
the problems, if the level of risk was within reasonably tolerable parameters, and, if not, as
would appear to be the case based on political rhetoric, what steps the Board took to ensure
unacceptable levels of risk were mitigated and system weaknesses fixed. Below, is a small
sample of statements John Dardo, Deputy Chief Executive Officer, Integrity Transformation and
Fraud Fusion Taskforce, gave to Senate Estimates in June 2024 that seem to support the
contention that insufficient attention was paid to problems with systems and processes over
many years, allowing the level of waste, fraud, and other financial loses in the NDIS to reach
extraordinarily high levels without an appropriate response:
Statement regarding how payments have been processed over many years:
As we look at many of these claims and many of these providers, what we’re
seeing is that the behaviours have been going on for years. It’s just that we’re
better now at seeing them and preventing or stopping them.20
Statements regarding immature NDIA systems:
The systems are so immature that some of the channels that participants could
claim through require no ABN, no description, no word—nothing. They can put on
a dollar amount and they get paid. So, until we actually go and do integrity work,
it’s impossible to find out what they’re actually claiming for. I’ll give you an
example. A participant on a $480,000-a-year plan divides that up by 12, claims
$40,000 a year, puts that in as a claim every month—40,000 bucks every month.
When we do the integrity work, we find out that he actually only has costs of
$20,000 a year, but because his plan is $480,000, he claims the whole amount,
and the other $20,000 goes to his mortgage or his bank account or his cost of
19 John Dardo, Deputy Chief Executive Officer, Integrity Transformation and Fraud Fusion Taskforce, at ‘Community Affairs Estimates Committee’, Hansard Draft, 3 June 2024, p.103. 20 Ibid, p.96.
25
living. I can’t break that down into how much he spends on alcohol or on a pet or
on something else, because there is no way to unpack that. What I would say is
that what we can tell you with certainty is that the minimum error rate is five per
cent. That’s the minimum error rate. Those errors don’t include identity fraud,
fraudulent invoices, false statements, collusion and all the other stuff.21
There are weaknesses in the design of the system that need to be addressed. We
cannot prosecute or audit our way out of this.22
Statement about the extent of fraud:
There are some providers that are really just fraudsters, criminals or criminal
syndicates, and they’re using the NDIS for cash flow. There are some participants
and providers that are the same thing. We have participants who have set up
businesses to pay themselves to look after themselves … it’s not clear that it’s a
provider or a participant or a nominee, because it’s all intermingled. The family
group has set up three entities, and they’re paying each other to look after each
other … There are some things there that are very intermingled between a
provider and a participant. The conflicts of interest are pretty extreme.23
Such descriptions of the internal systems and processes demonstrate a lax approach to
establishing fit-for-purpose operations and risk identification and mitigation since the creation of
the NDIS. Hence, the problems of waste and fraud can be described as symptomatic of Agency,
Board, and Ministerial failures to ensure appropriate secure operational systems and processes
were established and maintained, rather than fraud being the root cause of the financial leakage
from the Scheme. Examining what Board deliberations and activities have taken place over the
duration of the NDIS to address the ongoing problems resulting from systems and processes
that are not fit for purpose, resulting in excessive levels of waste fraud, is likely to be very
informative for the Committee in determining the extent to which current Board arrangements
are sufficient and consistent with legislative requirements and principles of effective
governance. Indeed, it appears successive NDIA boards have simply not been up to their task
and have failed to fulfil their statutory obligations. Incidentally, the same can clearly be said of
successive Agency and ministerial leaders. In short, how could these immature systems and
processes have been allowed to operate for so long without being fixed?
21 Ibid, pp.101-102. 22 Ibid, p.105. 23 Ibid, p.96.
26
Recommendation 8: The Joint Committee of Public Accounts and Audit should closely
examine the role of the Board in the apparent failure of the National Disability Insurance
Agency (NDIA) over many years to identify and fix inadequate systems and processes
resulting in extremely high levels of waste, fraud, and financial leakage from the NDIS. It
should make recommendations to improve the Board’s identification and mitigation of
risks within the Agency and Scheme.
5.2.4. Balancing multiple Board roles
The preceding three sections have covered the NDIA Board’s roles in ensuring the delivery of
high-quality impactful supports to participants, the sustainability of the Scheme, and the need
for fit-for-purpose operational systems and processes within the Agency. We believe it is
critically important that Board arrangements allow each of these objectives to be fulfilled
simultaneously and with appropriate balance. Any one of these functions must not distract from
the others. The Board needs to ensure tight fiscal oversight is maintained and Scheme funds
are properly accounted for and not wasted. But any outcome that elevates the accountability of
the Board for financial sustainability without giving equal attention to pursuing the delivery of
high-quality impactful supports that advance the life chances of participants, will be
counterproductive and lead to even higher costs. Delivering genuinely transformational benefits
for participants will increase their independence, create natural safeguards, and ensure
authentic social and economic participation in mainstream community life; each of which is
essential for long-term Scheme sustainability.
Recommendation 9: The Joint Committee of Public Accounts and Audit should ensure its
recommendations reflect a clear balance between the multiple roles of the National
Disability Insurance Agency (NDIA) Board and give equal weight to matters of financial
sustainability and the quality of participant outcomes capable of advancing the life
chances of participants, which reduces costs over the long term.
5.2.5. Increase Board transparency
The Committee should also consider how to introduce increased transparency of the Board’s
work and deliberations to increase public confidence in the effectiveness of the NDIS in
delivering on the Scheme’s promise. Otherwise, there continues to be a risk that the quality of
the Scheme is neglected while all the focus is on financial sustainability, yet the increase in poor
27
participant outcomes and ineffective supports will lead to even greater costs over the medium-
to long-term. Such a vicious cycle will be utterly counterproductive on all measures of NDIS
performance including sustainability.
In light of the above examples, we believe there is clear scope for greater public transparency
regarding how the NDIA Board has responded over the life of the NDIS. We appreciate that it
would be inappropriate to disclose everything that goes before the Board, but increased
information release would support a more informed, engaged, and ultimately trusting
relationship between the NDIA, participants, and the broader community. This could take the
form of a summary of key matters before the Board and decisions taken. It would provide the
Board with a stronger public profile, thereby enhancing its leadership role in relation to the
Scheme. This transparency could extend to interactions between the Board and the
Independent Advisory Council, which is established under Section 143 of the Act to advise the
Board. Section 145 requires the Board to share a copy of this advice with Ministers together
with a statement of the Board’s response. We suggest the Committee consider if and how this
advice and the response could also be released publicly to ensure accountability and
transparency.
Recommendation 10: The Joint Committee of Public Accounts and Audit should consider
and make recommendations about how the National Disability Insurance Agency (NDIA)
Board can increase the level of public transparency regarding its work and deliberations
to help ensure public confidence in its role is maintained and enhanced.
Recommendation 11: The Joint Committee of Public Accounts and Audit should consider
how an additional public disclosure requirement could be added to Section 145 of the
National Disability Insurance Scheme Act 2013 so that advice from the Independent
Advisory Council to the National Disability Insurance Agency (NDIA) Board is made
available publicly.
5.3. Missing Tier 2
As has now been widely recognised, the decisions of governments – federal, state, and territory
– to withdraw funding for a range of essential services under the guise of the NDIS roll out left
many children and adults with disability without the supports they required and caused
significant additional demand for individual NDIS plans. Originally, the Productivity Commission
envisioned a comprehensive set of Tier 2 supports that would exist alongside Tier 3 individual
plans. The NDIS Review recommended governments fulfil their responsibility to appropriately
28
invest in Tier 2, or what it called Foundational Supports, and there appears to be a commitment
to do this despite the ongoing bickering between the Federal and state and territory
governments about money. This is welcome and, if done well, we believe it will lead to better
outcomes for people with disability and enable many to have all or some of their support needs
met outside the NDIS. Nevertheless, as this is yet to occur, any consideration of the costs and
administration of the NDIS to date needs to account for the significant mistake of government’s
withdrawing funding from Tier 2 supports. Additionally, the extent to which mainstream services
are available depends on a person’s location. Accessibility, affordability, and a lack of
information and navigation support to clearly identify options are additional barriers that lead
people to seek individual plans.
Like for reforms of the NDIS itself, the Federal Government should establish a comprehensive
genuine co-design process for Foundational Supports, including the Thriving Kids initiative
announced last year. To design these only with the state and territory governments as has been
indicated so far will result in a poorer outcome. The community input into the NDIS Review
appears to be cited as a substitute24 for genuine co-design – or, indeed, anything beyond the
most minimal community consultation. To be clear, the NDIS Review did not present an options
paper or consult the disability community on specific recommendations, including regarding
Foundational Supports, prior to releasing its Final Report. Arguably, public consultation for the
Review focused too much on (the important task of) hearing about problems, grievances, and
poor experiences people have had with the NDIS and not enough on (the equally important task
of) deeply interrogating ideas and potential options for positive reforms. Regardless, those
consultations during 2023 are useful but inadequate to inform the development of Foundational
Supports now. Likewise, the consultation on Foundational Supports conducted through the
Department of Social Services (DSS) in December 2024 will be useful and relevant but is also
not an adequate substitute for a substantive co-design process to develop Foundational
Supports. Correcting course on Tier 2 supports will require all levels of government to work
together and in partnership with the disability community to chart the best path forward.
Recommendation 12: The Joint Committee of Public Accounts and Audit should
recommend the Federal Government establishes a genuine co-design process involving
lived experience and subject matter experts in decision making to develop, trial, adjust,
roll out, and evaluate Foundational Supports, including Thriving Kids, because this
approach offers the best chance of success. The sustainability of the National Disability
24 For example: “The final program design will be … informed by … the significant community input received through the Independent Review of the NDIS…”, see page 1 of Department of Health, Disability, and Ageing, ‘Thriving Kids – Fact Sheet’, 22 August 2025, available at https://www.health.gov.au/resources/publications/thriving-kids-fact- sheet?language=en.
29
Insurance Scheme (NDIS) will be significantly enhanced if Foundational Supports are
well designed and effectively rolled out through a constructive partnership with the
disability community.
5.4. Issues that hamper ILC success
One element of the Tier 2 vision that has been rolled out is the Information, Linkages, and
Capacity Building (ILC) program. However, while it has achieved many benefits, it is not having
the extent of impact it could. The funding allocated to the ILC program is tiny compared to the
overall cost of the NDIS. The 2025-26 Budget indicated the ongoing annual funding for the ILC
program will be just $150 million per year compared to almost $50 billion for the NDIS. The
Committee should consider the potential for much greater impact to be achieved through ILC
projects with an increased funding allocation to support projects that demonstrate successful
outcomes. We welcome the commitment that the redesigned ILC program will enable longer
funding periods and more financial certainty for high-performing projects, however the
Committee should note this has not been a feature of how the program has been managed to
date.
In fact, for the third year in a row, organisations currently delivering important ILC-funded
projects are facing significant uncertainty about the continuation of their work. There has not
been an open ILC grant round advertised since September 2023, therefore projects are being
sustained on short-term extensions or ad hoc grants. Many of these are slated to end on 30
June 2026, although the Department has opened an expression of interest process for six-
month extensions. The ongoing delivery of high-quality projects is best achieved when there is
funding certainty at least six months ahead of when current funding runs out. This provides
stability for program participants, ensures experienced staff can be retained, and allows time for
activity planning. This will not be the case again for any forthcoming extensions, as mentioned
above. Given the way similar scenarios have been handled in the past two years, organisations
are understandably nervous about another repeat of the same difficult circumstances and void
of information. Again, the lack of certainty going forward remains a source of concern and
distress for people with disability, their families and allies, employees, and organisations. For
some participants in ILC project activities, particularly peer support groups, this connection may
be the only link a person has to community and information. At a time of significant change in
the NDIS and other areas, losing these connections will be catastrophic. The Committee should
seek to understand this issue and make recommendations to avoid any further repeat.
30
Further, the ILC program has recently lacked an overarching public-facing strategy.
Organisations have largely had to guess what streams of funding may become available when
and lodge grant applications accordingly. With the first grant round under the redesigned
approach said to be imminent, it is concerning that no overarching strategy or framework for this
has been released publicly to provide organisations and the community with a fulsome picture
of the Federal Government’s vision for ILC going forward, what funding streams will be available
and when, and, if any previous streams are to be excluded, what alternative options to continue
valuable projects are available. Similarly, to enable pre-planning, it would be very useful to
understand who will be eligible for funding under the new program. The design of the ILC
program to date has excluded small local entities, such as peer groups, that have much to offer
but not the structures, resources, or skills to compete with larger organisations in competitive
processes. The Committee should seek to understand the Federal Government’s vision for the
ILC program and make recommendations about the need for an overarching public-facing
strategy to be released as soon as possible.
Recommendation 13: The Joint Committee of Public Accounts and Audit should consider
how the Information, Linkages, and Capacity Building (ILC) program can be strengthened
into the future, including, but not limited to, an increased funding allocation, financial
certainty for organisations, and a clear overarching public-facing strategy. The
Committee should also seek to understand why organisations with ILC-funded projects
are facing an unknown future come 30 June 2026 – for the third year in a row – and make
recommendations to avoid any recurrence of this issue in the future.
31
6. A new way forward for the NDIS
The previous two sections of this submission have addressed the origins of the Scheme and the
problems in its implementation. This section turns its attention to the future. We strongly believe
the Federal Government should establish an overarching genuine co-design process that
involves people with disability and subject matter experts in decision making. We also offer a
few ideas (from among many) about how the NDIS can be strengthened and made more
financially sustainable that could act as a starting point for considerations. During the 2023
Review of the NDIS, JFA Purple Orange presented a Conversation Series25 discussing the best
way forward for the NDIS. As an organisation, we have had a longstanding engagement and
deep interest in the Scheme and broader policy space over many years now and have drawn on
some of this work here.
6.1. Genuine co-design is critical
The Federal Government is yet to release a formal response to the NDIS Review. Its reform
processes, which have taken many different names over the past four years, continue to be
disjointed and confusing. Successive Budget Papers also demonstrate the expense of what
appears to be a strategy of spending money to save money26 that has not demonstrated clear
commensurate results. What savings have been made seem to be mainly from reducing the
plans of participants rather systemic improvements to the administration or quality of the
Scheme. Many people with disability feel fatigued and distrustful of those making decisions,
which is exacerbated by repeated unfulfilled promises to genuinely co-design changes with the
disability community.
We believe the best approach to reforming the NDIS is to implement an overarching genuine
co-design process that involves lived experience and subject matter expertise in decision-
making, implementation, and evaluation to ensure the NDIS is fit-for-purpose now and into the
future. As the Committee is likely aware, genuine co-design is an inclusive, collaborative
process whereby a diverse range of people with relevant knowledge, lived experience, and
25 JFA Purple Orange, ‘NDIS Conversation Series’, 2023, available at https://purpleorange.org.au/news- resources/ndis-conversation-series. 26 Over its past four budgets, the Federal Government has allocated hundreds of millions of dollars to various National Disability Insurance Scheme (NDIS) reform processes: in 2022-23, a budget measure titled Plan for the National Disability Insurance Scheme; in 2023-24, a measure called Improving the Effectiveness and Sustainability of the National Disability Insurance Scheme; in 2024–25, another measure, this time called Getting the NDIS Back on Track; and in 2025-26, yet another measure, Strengthening the National Disability Insurance Scheme.
32
interests come together in partnership with governments to provide advice and make decisions
about a project, policy, or program. It will ensure reforms benefit from a full diversity of input into
decision making throughout the entire roll out phase. This provides many benefits not just to the
development of the program but also for the buy in of intended beneficiaries and the broader
community as the new approach is established. Nevertheless, we continue to be concerned
many of the processes that governments are currently referring to as co-design fall well short of
best practice and do not include active involvement of intended beneficiaries in decision
making. The Committee may find our Guide to Co-Design with People Living with Disability,
which was itself co-designed, helpful in considering the essential steps required in undertaking
genuine co-design processes. It is available via our website.27
Recommendation 14: The Joint Committee of Public Accounts and Audit should consider
the many benefits of establishing genuine co-design processes involving lived
experience and subject matter experts in decision making for the success of reform
processes and make a clear recommendation that the Federal Government adopt this
approach regarding the National Disability Insurance Scheme (NDIS) and Foundational
Supports.
Recommendation 15: The Joint Committee of Public Accounts and Audit should
recommend ways to rebuild trust between the Federal Government, including its
agencies, and the disability community with a focus on working together to achieve
better outcomes for the quality and sustainability of the National Disability Insurance
Scheme (NDIS).
6.2. Place accountability at the core
Unfortunately, oversight and accountability took a backseat in the roll out of the NDIS. While the
Scheme was created in 2013, the NDIS Quality and Safeguards Commission (NDIS
Commission) was not set up until five years later in 2018. This meant the NDIS Commission
missed the opportunity to grow and mature alongside the NDIA and NDIS and seems to have
been playing catch up ever since. It also meant the NDIA and governments did not receive
advice as early as they might have about problems in the roll out of the Scheme and with the
poor-quality systems and processes that were being embedded in it. This failure to design the
27 See https://purpleorange.org.au/library/guide-to-co-design-with-people-with-disability/.
33
Scheme with oversight and accountability at its core has been a significant contributor to the
problems that many now use to claim the NDIS has failed.
There needs to be much greater focus on oversight and accountability in the NDIS going
forward. This needs to be fit-for-purpose and have a clear link between actions and outcomes.
Too much of the regulation in the NDIS currently involves tick-and-flick paperwork rather than
purposeful oversight. Critically, ‘auditing’ a disability support provider to make sure it is
compliant with quality and safeguarding expectations must go beyond a review of
documentation. Observation is much more important. Oversight must include people visiting
sites to observe what happens and speak with NDIS participants. This is more likely to reveal
the quality and character of the supports being provided than the presence of relevant
documentation. There also needs to be greater attention given to building and retaining a high-
quality workforce. Notwithstanding this, the workforce issues that affect the NDIS are not an
inevitable result of the NDIS itself. Rather, they are a consequence of poor design and
implementation of oversight and accountability mechanisms.
Recommendation 16: The Joint Committee of Public Accounts and Audit should examine
the adequacy of oversight and accountability mechanisms in the National Disability
Insurance Scheme (NDIS) and make recommendations to ensure these are placed at the
core of the Scheme.
6.3. Establish clear roles without conflicts
There is currently too much confusion about who does what in the NDIS. This is compounded
by conflicting roles where the same person is expected to serve both the NDIA and the
participant even when the interests of each diverge. These conflicted and confused roles are
particularly evident in the planning process. Currently, Local Area Coordinators (LACs) are
expected to both support participants and act on behalf of the NDIA as planners and arbiters of
who gets what budget allocations and supports. This results in poor quality outcomes in both
roles leading to a lack of trust, more conflicts and disputes, and increased referrals of decisions
to review and appeal processes. We strongly believe NDIA delegates/planners should be the
‘agent of the Scheme’ and LACs should be the ‘agent of the participant’. LACs should not be
official or unofficial NDIA delegates or planners and there should be no overlap between the two
roles.
The role of an LAC should be to stand alongside the person with disability, supporting them to
access information, make decisions, and connect to their community. The decision to make
34
LACs conduct NDIA administration and planning has not only led to significant inefficiencies in
the planning pathway but has also hampered their ability to undertake the traditional LAC role,
which is to support people to connect to and utilise mainstream community services and
supports. The latter has increased costs and further exacerbated the drive for individual NDIS
plans. LACs should be based in local communities and have local knowledge and relationships
to help people with disability access the mainstream services they need and make authentic
community connections. Indeed, we have written at length28 about the need to disentangle the
roles of NDIA delegates/planners and LACs and how restoring the traditional LAC role would
boost the cost effectiveness of the NDIS.
Another example of unclear and conflicting roles is intermediaries. Despite becoming a billion-
dollar industry, support coordination and plan management are ill-defined and confusing to
many participants. They are categorised as capacity building supports even though both have a
perverse incentive not to build participants’ capacity because if they do, they will no longer be
needed. Conflicts of interest are rampant and costly especially in the support coordination role
where it is common for referrals to be made to related service providers. Intermediary roles are
a product of too much complexity in the NDIS but also operate in ways that bring even more
complexity and expense into the Scheme.
Restoring the traditional LAC role will help pave the way to also address the issues with
intermediaries. LACs should assume the parts of the support coordination and plan
management roles that align with being an ‘agent of the participant’ (LACs having been freed up
to do this through no longer having their current roles on behalf of the NDIA, per above). The
NDIA should undertake the invoice data entry role of plan management (outsourcing invoice
data entry/capture and charging each individual plan for this so-called ‘support’ is expensive
and unnecessary). A redefined support coordination role for complex formal support needs
should operate on the supply/provider side of the Scheme with a focus on ensuring support
continuity, managing relationships between providers, and similar (this is what others are
referring to as a ‘case manager’ role but we suggest avoiding this dehumanising term).
Addressing these overlaps and conflicts will increase the cost-effectiveness of the Scheme.
Recommendation 17: The Joint Committee of Public Accounts and Audit should
recommend a recalibration of key roles and responsibilities in the National Disability
28 See https://purpleorange.org.au/library/ndis-review-conversation-series-paper-no-2/.
35
Coordinators (LACs), NDIA planners, support coordinators, and plan managers in order
to make the Scheme more cost-effective and sustainable.
6.4. Let participants author their own plans
Each NDIS participant should be the ‘author’ of their own plan (or, in the case of a child, their
parent/s or guardian/s should be). It should reflect their authentic choices based on their
individual goals. This approach would increase participants’ ownership of their plans and reduce
the adversarial tone of planning that encourages disputes. Instead, the current complex and
expensive participant pathway results in NDIS plans that are largely ‘owned’ by the NDIA and
often disliked or rejected by the participant. This will continue to be the case under the NDIA’s
proposed approach to ‘new framework’ planning set to start later this year. Complexity in the
NDIA’s processes inevitably increases its control and inflates the costs of formulating plans
while restricting participants’ choices.
As we have written elsewhere about a simple pathway29 and assessment tool30, we believe the
NDIA should adopt a straightforward participant pathway whereby the NDIA assesses eligibility
and provides the person with an indicative budget based on their needs and circumstances,
then allows the participant to develop their own draft plan covering the supports they choose to
prioritise, before the NDIA checks and calibrates the final plan and budget. At the end of the
plan, the NDIA evaluates the impact of the plan alongside the participant, asking what has
achieved results and what has not, then, based on this information and the person’s updated
circumstances, provides an indicative budget for the next plan, and the process repeats. At the
check and calibration point, the NDIA can ensure the new plan reflects the learnings from the
previous plan about what each support did or did not achieve. A person could choose what, if
any, informal or formal supports they need to draft their plan. Informal support might be from a
family member while the primary formal support role would be provided by the person’s LAC
within the bounds of the redesigned role described in the previous subsection.
We note that there has recently been conjecture that too much is expected of NDIS participants,
particularly those with intellectual or cognitive disability. This is a result of the inadequate and
poor-quality support that is being provided to them, not because agencies and professionals
need to take more control and double down on outdated modes of substitute decision making.
As the Disability Royal Commission emphasised, there is an urgent need for Australia to embed
29 See https://purpleorange.org.au/library/ndis-review-conversation-series-paper-no-1/. 30 See https://purpleorange.org.au/library/ndis-review-conversation-series-paper-no-3/.
36
supported decision-making approaches across all systems and processes. Unfortunately, the
roll out of the NDIS has increased the number of Australians subjected to formal substitute
decision-making mechanisms such as guardianship. These formal mechanisms are more
expensive over the medium- to long-term than implementing supported decision making through
well trained workers. In this instance, LACs should be trained to implement best-practice
supported decision-making processes to enable participants to be the author of their own plan.
With participants assuming authorship of their plans within their assessed budget, the number
of corrections, disputes, reviews, and appeals to the Administrative Review Tribunal (ART)
based on arbitrary or misinformed NDIA decisions will inevitably reduce, saving many millions of
dollars every year. We acknowledge that the way the NDIS has operated so far has resulted in
a set of expectations about budgets and plans that may not be fulfilled for every participant
under this approach. However, allowing participants to author their own plans and enact their
choices, rather than engaging in item-by-item adversarial negotiations with poorly trained
planners, who we are regularly told lack an adequate understanding of the experience of
disability, will offset this and ensure expectations adjust over time. It will also eliminate the
inconsistent decision making of planners about what supports a person can have because
people are choosing, within rules, how to use their funding. We recognise that relinquishing any
amount of control will be anathema to many politicians and bureaucrats, but asserting
government control over everything is expensive. The goal should be to exercise as little control
as is needed to administer the NDIS in a reasonable, cost-effective, and safe manner that
achieves beneficial outcomes for participants while upholding their right to choice, dignity, and
inclusion.
Recommendation 18: The Joint Committee of Public Accounts and Audit should examine
the complex and expensive participant pathway currently operating in the National
Disability Insurance Scheme (NDIS) and recommend participants ‘author’ their own plans
based on their assessed budget with available support from their Local Area Coordinator
(LAC), who is trained in best-practice supported decision making.
6.5. Apply clear principles on what supports can be purchased
In 2024, the Federal Government introduced a lists approach to what NDIS participants could
and could not use their plan budgets for. This added additional complexity to the Scheme and
has several financial risks associated. Lists remove the capacity to consider the most cost-
effective option to achieve the best outcome for the participant. Participants are prevented from
37
accessing innovative, low-cost solutions that could meet their needs more cheaply than
traditional supports. The list of allowed supports effectively functions as a ‘shopping list’ with
participants more likely to receive a support because it is on the list rather than because it
represents value for money for their needs. With the ‘lists’ encouraging a ‘tick-and-flick’
approach, narrow thinking is more likely to result in missed opportunities to proactively access
supports that will reduce needs later. Currently, the NDIA cannot see the forest for the trees – in
other words, it is so focused on arguing line-by-line points that it misses the bigger problems
that actually drive Scheme inflation.
Instead, we strongly believe a principles-based approach will be more cost effective and deliver
better results over the longer term. Principles are more likely to encourage innovation than
arbitrary lists. They are also easier to understand and reduce grey areas. We suggest the
following four principles as an example of how a principles-based approach could be applied,
although this is only a starting point that should be considered as part of a genuine co-design
process:
Principle 1: The support advances or maintains the participant’s independence and enhances
the participant’s choice and control over their own life.
Principle 2: The support facilitates the participant’s social and economic participation by
advancing them into meaningful roles in mainstream community life – including opportunities for
employment, education, community, civic, and cultural engagement – and does not involve
placing the person in a new segregated, congregated, or exploitative setting.
Principle 3: The support represents value for money in the context of the participant’s plan and
is not manifestly unreasonable relative to the benefits it delivers. In considering value, a support
that is expected to reduce the need for other more expensive supports (either now or in the
future) may be deemed reasonable even if it has upfront costs.
Principle 4: The support is legally and ethically acceptable. It must not be unlawful in Australia,
and it must not be likely to cause harm to the participant or others beyond what is a reasonable
dignity of risk.
With the focus on an assessed budget and greater flexibility and freedom to use this to access
supports that work best for individual needs, this will not have an inflationary effect. Indeed,
arguing line-by-line supports is more likely to inflate what is included in a plan. With a fit-for-
purpose invoicing system, which, as described above, the NDIA does not currently have, the
Agency would be able to provide greater oversight of how plan funds are actually being spent.
Additionally, also mentioned above, a fulsome evaluation of the impact of each plan on the
participant’s life will reveal what is cost-effective and where spending problems exist.
38
Recommendation 19: The Joint Committee of Public Accounts and Audit should examine
the complex, adversarial, and expensive process for approving supports in NDIS plans
through the current lists approach and make recommendations to simplify the rules and
replace the lists with clear principles that encourage innovative and lower-cost solutions.
6.6. Balance natural and formal safeguards
People are more likely to be safer when they are connected to their neighbourhood, local
community, and social groups based on their interests and goals. Being an active member of
local community life, and the mutually valued relationships that emerge from that, is a
compelling safeguard. Freely given relationships of mutual support and benefit offer the greatest
protections and safeguards for us all, and it should be no different just because a person has a
disability. When people know other people, they are safer because someone else will check in
and/or notice when something is wrong. Natural informal safeguards are not separate to or
outside the remit of the NDIS. The NDIS has a critical role in advancing social, economic, and
cultural participation and investing in supports that create opportunities for authentic freely given
relationships to emerge. Critically, for an examination of the administration of the Scheme,
investing in natural safeguards is extremely cost-effective because it leverages existing
resources that are already present in communities. Retrograde steps to re-institutionalise and
exclude people with disability from their rightful place in our communities will undermine this and
require extra investment in formal agencies and safeguards.
Nevertheless, formal safeguards still have critical roles to play in providing assurance and
accountability within an integrated safeguarding framework. Purposeful regulatory, compliance,
and reporting mechanisms are all essential to the proper functioning of the NDIS. These need to
cover proactive mechanisms, such as worker screening and organisational auditing, and
reactive measures, including complaints procedures and incident investigation processes. Both
the NDIA and the NDIS Commission have responsibilities to provide oversight of participant
welfare and of organisations and individuals delivering supports and services funded by the
Scheme. As we have described elsewhere31, it is critically important the NDIS works to boost
cost-effective natural safeguards as well as ensuring there are strong formal regulatory and
oversight mechanisms in the Scheme.
Recommendation 20: The Joint Committee of Public Accounts and Audit should
recognise the cost-effectiveness of informal natural safeguards for people with disability
31 See https://purpleorange.org.au/library/ndis-review-conversation-series-paper-no-6/.
39
living in inclusive neighbourhoods and communities and consider ways these can be
enhanced alongside adequate investment in strong formal oversight and accountability
mechanisms.
40
7. Conclusion
Thank you for the opportunity to contribute a submission regarding the Joint Committee of
Public Accounts and Audit’s Inquiry into the Administration of the NDIS.
The NDIS has been an extremely beneficial innovation in Australia but unfortunately numerous
missteps in successive governments’ implementation of the Scheme have impacted the quality
of supports it delivers, had an inflationary impact on costs, and rendered it vulnerable to political
attack. We implore the Committee to focus on how to fix these problems of implementation
rather than on winding back all or part of the Scheme, which will inevitably create more, just
different, costs in the NDIS and broader government systems. It is critically important that the
origins of the NDIS and the key tenets of dignity and inclusion continue to sit at the centre of the
Scheme and inform its evolution. There are numerous cost issues that arise from how the
Scheme is designed that will not be recognised or understood if the Committee focuses too
heavily on the day-to-day administration of the Scheme. As such, we urge the Committee to
adopt a broad lens over all elements of the Scheme including expanding the scope of this
Inquiry to examine all important actors, not just the public service.
We are keen to discuss this submission further with the Committee and answer any questions
members might have. To arrange this, please contact redacted, Interim CEO, JFA Purple
Orange, on redacted or redacted.
41