NDIA Accountability Project

Concerns about future care for son with a disability

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 7:40:39 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

The disability system doesnt work for my family because it is a constant battle of bureacracy and availability of funds to access services or equipment.

Respite and accomodation services are completely lacking and there is never any information available for parents to access.

All parents of disabled kids rely on each other for support and information, you tend to find out services etc that are available via them than the disability system.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • People with disability/family will influence the types of support and services offered,
  • Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Equipment and home/vehicle modifications,
  • Support for families and carers,
  • Accommodation options

I support the introduction of the NDIS.

I support the NDIS because it will make life fairer for many Australians with a disability. There are many people with a disability through no fault of their own or negligence, and the families. of those people have to get through the best way they can.

Finances are always an issue and if support was available for items such as vehicles etc it would help make life easier for these families.

Unfortunately, there are a lot of families living with a disability, that do not have a family network to assist with the day to day care of their dependant. If support was more readily available it would ease the burden.

As my son and I both grow older, my main concern is what will happen to him if I were not around. That is the issue for many aging carers. More accomodation needs to be provided.

I agree for my submission to be made public

Regards, Mrs Narelle Minati