Rare Chromosome disorder and support access

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 18 January 2013 1:30:48 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

Our daughter has a Rare Chromosome disorder that doesn’t have a name. Her development is very similar to the average person with Down Syndrome, but because what she has is rare, she doesn’t receive the same level of support.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed, The ability to receive services when needed and in the way that suits the person, Access to reliable information about support options

The most important services for the NDIS to provide are:

  • Therapy and allied health services, Education support (technology/services/equipment), Flexible in-home/outside home respite

I support the introduction of the NDIS.

No matter how someone acquires their disability, or if their disability is common or not, they should be able to access funded support that will help them achieve their full potential, based on their individual needs.

I agree for my submission to be made public

Regards, Mrs Sharyn Weir