Support for young adult with Angelman's Syndrome

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 18 January 2013 10:25:41 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

Have a young adult with Angelman’s Syndrome that needs 24/7 care, no facilities available outside of the South East corner of Queensland.

The main features of the NDIS that will make a difference to the community are:

  • Better access to mainstream support and services,
  • Increased ability to coordinate services to suit the “whole” person/family,
  • Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Accommodation options,
  • Case management, planning and coordination

I support the introduction of the NDIS.

Ongoing support for (with Angelman’s Syndrome) who can not live independently. It’s no ones fault he was born with Angelman’s Syndrome, but it would be great if we as a community could care for him.

I agree for my submission to be made public

Regards,

Mr Michael Schroeter