NDIA Accountability Project

Daughter with Spina Bifida requires ongoing wheelchair funding

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Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 21 December 2012 9:25:00 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

My daughter was born with Spina Bifida 24 years ago and the funding that was given to us for her to help with the cost of her wheelchairs back then changed minimally if at all.

I am tired of begging for handouts so she can have a wheelchair as she grows. Her last chair she had for 12 years and she should have one every 7 years but the work involved in getting funding from many sources to help with the payments make me feel like a beggar.

Also, we drown here in services for the intellectually disabled but there is next to nothing for the physically disabled. Please we need things to change dramatically to make it easier on the next generation of disabled people come to the fore..

PLEASE HELP US.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • People with a disability can choose the types of support to use,
  • Better access to mainstream support and services,
  • Better access to education and work opportunities,
  • More opportunities to participate in the community,
  • More employment of people with disability and less reliance on social welfare,
  • More rights for people with a disability,
  • People with a disability can plan their lives and pursue their goals and dreams,
  • People with disability can choose who comes into their home,
  • The ability to receive services when needed and in the way that suits the person,
  • Increased ability to coordinate services to suit the “whole” person/family,
  • Minimising the number of times people have to tell their story in order to get support,
  • Less red tape, with planning done locally by people who know their community,
  • Access to reliable information about support options,
  • Removal of age barriers to services for children,
  • People with disabilit y/family will influence the types of support and services offered,
  • Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Equipment and home/vehicle modifications,
  • Education support (technology/services/equipment),
  • Life-skills,
  • Employment support,
  • Recreation and community access,
  • Support for families and carers,
  • Accommodation options,
  • In-home care and domestic assistance,
  • Flexible in- home/outside home respite,
  • Case management, planning and coordination,
  • Crisis and emergency support,
  • Positive behaviour support and psychological services,
  • Interpreters and other communication support

I support the introduction of the NDIS.

I cant possibly choose three. They are all important to different people for

  • different reasons.

I agree for my submission to be made public

Regards,

Ms Kaye Waghorne