Spam: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Spam: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Monday, 21 January 2013 3:13:09 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed. The disability system is needing a huge overhaul, governing bodies like ADHC could send in auditors to oversee Service Providers, delivering services to Community Participation Centre-Based Programs and check that management are not in it for profit sake. Also send in experienced and qualified disability assessors, to speak one on one to persons using the services and/or their carer/parent to make an agreed quality service check. I have been victimised and bullied in the past by one such service by management and committee. My daughter was left to sit in front of a computer at lengthy times and some staff were told to ignore her medical condition. We have since moved on, with support of ADHC’s Deputy Regional Director , and with the mentoring and advice from Ability Options my daughter is working with a support worker,from home in Self Managed Community Participation Program, that is specifically planned to her needs, her ideas, this has helped develop self confidence and an eagerness to learn new skills towards living independently in her home. “No I cant do!” is something my daughter used to say. The NDIS will reach many people to ensure that quality of learning and support does not stop at their final year of school. An individual’s cognitive age is not in any policy, nor is it recognised, once their an adult they are expected to behave like one, even if their mind is developmentally delayed as a child, the age of innocence. That should also be respected. I have since heard that there are still many people dissatisfied with services, feel they are locked in and dont know who to turn to.

The main features of the NDIS that will make a difference to the community are:

• People with a disability can plan their lives and pursue their goals and dreams,
• The ability to receive services when needed and in the way that suits the person,
• Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

• Life-skills, In-home care and domestic assistance, Case management, planning and coordination

I support the introduction of the NDIS.

I support the NDIS, knowing my daughter has many “sisters and brothers’ who share similar needs for a supportive network that will enable them quality in life and I have similar needs like other parents, for that network to be up and running, well before I depart, relieving the responsibility to someone who doesnt know my daughter, like I do. My hope that the NDIS will provide an assurance that there is in place, a scheme of support to suit all persons with varying disabilities, whether it be medical needs, independent living support, crisis/emergency support. It is all services to many that should connect together to support

• people, that we of the mainstream take for granted.

All services and any information required should be on a system with one number to dial.

I agree for my submission to be made public

Regards,

Ms Lorraine Diaz