Son with Down syndrome and Imperforate Anus requiring surgery and therapy

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Tuesday, 22 January 2013 10:42:26 AM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

I have a little boy 4yrs who has Down syndrome and was also born with an Imperforate Anus (IA). has had a lot of surgery due to his IA; combined with all the therapy he needs/attends I have been unable to work fulltime which has impacted greatly on our family. There are a lot of extra costs that go along with having a child with a disability and I have found that any kind of goverment help or funding available to us is only discovered by word of mouth from other mums. We need a system that is up front and individualised, at the moment we feel very much on our own when it comes to supporting needs - and he is only 4 years old.

The main features of the NDIS that will make a difference to the community are:

  • People with a disability can plan their lives and pursue their goals and dreams,
  • The ability to receive services when needed and in the way that suits the person,
  • Access to reliable information about support options

The most important services for the NDIS to provide are:

  • Therapy and allied health services, Equipment and home/vehicle modifications,
  • Education support (technology/services/equipment)

I support the introduction of the NDIS.

Because is a person who deserves the basic right to plan his future and fulfill his hopes/dreams with confidence and an easily accessible system of support that is uniform in each state.

I agree for my submission to be made public

Regards,

Miss Nicole McCarthy