Difficulties qualifying for funding and recognition of ME/CFS and Fibromyalgia

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 24 January 2013 11:38:05 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

ANowhere near enough funding to go around and too hard to qualify for anything because of tight limitations on funding. Also, Myalgic Encephalomyolitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia don’t get officially recognised for the seriously debilitating conditions that they are.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • People with a disability can choose the types of support to use,
  • Increased ability to coordinate services to suit the “whole” person/family

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Equipment and home/vehicle modifications,
  • In-home care and domestic assistance

I support the introduction of the NDIS.

I hope that it will be a better system than what we have currently. I hope more people will get more of they need instead of admin and pen pushers and useless information that provides no service.

I agree for my submission to be made public

Regards,

Mrs Leah Newnham