From: To: Community Affairs, Committee (SEN); Subject: Spam: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 25 January 2013 9:37:04 AM
Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
10 year old Daughter with hearing loss gets no support at school, not entitled to funding - schools don’t want her - deafness is the least understood and supported in the school system. She is not entitled to a school with hearing unit as she is not funded. Flies under the radar as she falls short of the cut off by only 1.5 decibels. We are forced to pay for private tuition that we can no longer afford.
50 year old Sister with intellectual disability, Medical and dietary conditions is now ageing and her decline is rapid requiring low level care in a facility. It is not possible to support her in the family as those that are young enough too are struggling to support families and cannot be there during the day to provide her necessary support. The parents are 78 and 88 years of age and in need of care themselves, yet are forced to provide accommodation and support for her. Accommodation opportunities are non-existent for her age group and her disabilities.
The main features of the NDIS that will make a difference to the community are:
- Better access to education and work opportunities,
- The ability to receive services when needed and in the way that suits the person,
- Older parents and families will not worry what happens when they can no longer provide support
The most important services for the NDIS to provide are:
- Education support (technology/services/equipment),
- Employment support,
- Accommodation options,
- Case management, planning and coordination
I support the introduction of the NDIS.
I am of the belief or hope that the NDIS will assist in providing the necessary tools, care and options to allow my family members to live life independently and with dignity. That they will be able to make choices or have some control over how they can move forward in life. Wouldn’t it be nice for them to set goals and know that there is support around to help them achieve that? Imagine how nice it would be to be provided education to the same level as those with no disability? Or being able to live in accommodation suitable to your needs. Most of all, wouldn’t it be nice to feel part of a community rather than a burden and constantly having to fight for the rights that others simply take for granted.
I agree for my submission to be made public
Regards,
Mrs Jenni Hauwert-Swistak