Addressing inequities in support for families caring for severely disabled loved ones

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 25 January 2013 3:31:33 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

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The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • Increased ability to coordinate services to suit the “whole” person/family,
  • Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Support for families and carers,
  • Flexible in-home/outside home respite,
  • Crisis and emergency support

I support the introduction of the NDIS.

I believe that the current situation is inequitable. Provision of essential services and resources should be based on need rather than the ability to meet the costs of the provision of those services and resources. As a result of a “pay out” some disabled people are awarded significant sums of money which enable them to access expensive and sophisticated resources and full-time professional assistance. However, other people who do not have the benefit of a “pay out” must rely on limited government support, assistance from charitable organisations and support of family and friends. In the case of caring for the severely disabled, the lives of these families are often changed dramatically. In addition to attempting to meet the needs of a severely disabled loved one, their own hopes and aspirations are often smothered by the constant pressures of being a full-time carer. Hopefully, the NDIS will go some way to addressing these inequities.

I agree for my submission to be made public

Regards,

Mr Ken Callan