NDIA Accountability Project

Daughter's confused future with disability support

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 25 January 2013 4:36:43 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

Unfair - those who know gain more support; the toll from input on me as I age is exthausting and never-ending; no end in sight to my caring role; the information absorption needed and my contribution over the years to my daughter with disability has been harmful to both my health and my relationship with my family

  • and it has never been easy throughout her 33 years of life, and is not getting easier now; despite having a level of support, my daughter with disability still has a very confused and confusing for her future in terms of any real idea as to what her life looks like being; too many staff/aide/assistant staff changes when trying to implement her personal programs result in inadequate support; inadequate career structures and pay recognition for staff in the care/support industries result in the loss of dedicated and committed people to other careers;

The main features of the NDIS that will make a difference to the community are:

  • People with a disability can choose the types of support to use,
  • Increased ability to coordinate services to suit the “whole” person/family,
  • Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Support for families and carers,
  • Case management,
  • Planning and coordination,
  • Positive behaviour support and psychological services

I support the introduction of the NDIS.

Funding is not fair for all; insufficient choice of service providers; no freedom to get services specific to the individual with disability; no whole of life approach to disability; still no real effective support for job searching or changing from inadequate jobs; a one-size-fits-all approach is wrong; too much bureaucracy and paperwork for families to try to cope with; design of paperwork advantages those with experience, not those who use the services of agency providers who don’t know the whole story; insufficient supported housing opportunities; inufficient independent living units in areas of choice; no easy accessed mortgages for people with disability; no people with intellectual disability in parliament; unlike women and indigenous people, no positive discrimination for people with intellectual disability.

I agree for my submission to be made public

Regards,

Mrs Evelyn Scott