Paraplegic man’s experience with disability support system

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Saturday, 22 December 2012 9:31:15 AM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

I am a paraplegic (spinal ganglioma tumour) and have been for three years. I am 57 years old. I am single and have no children nor any family ties. I am an Australian born male.

Every time that I have approached “the system” for help or advice I am informed that I need to talk to the right people.

BUT TIME AFTER TIME

I am never given the specific contact details nor allowed to know who the right people are.

To me, it is like talking to members of an elite club of which I am not a member and somehow I am interfering with their schecule.

The main features of the NDIS that will make a difference to the community are:

  • Better access to mainstream support and services,
  • The ability to receive services when needed and in the way that suits the person,
  • Access to reliable information about support options

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Case management, planning and coordination,
  • Positive behaviour support and psychological services

I support the introduction of the NDIS.

We, the disabled, require absolutely a system that takes the view and complete perspective through the eyes of the recipient. Not from the perspective of how to build another silo of paper shufflers. that view the disabled as a nuisance that is getting in the way of their career path.

I agree for my submission to be made public

Regards,

Mr John Poulton