Daughter with Down syndrome and specialist medical requirements

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Saturday, 22 December 2012 9:56:42 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

to whom it may concern,

Our daughter has Down syndrome and along with this diagnosis comes a range of specialist medical and educational requirements. We regularly access the help of nine specialists ranging from a speech therapist to an opthalmologist. We rarely use respite care, (but could benefit from a break every now and then) and find the process of accessing any support incredibly confusing and time consuming. None of these interventions are co-ordinated by anyone other than ourselves.

Although we love our daughter, there are additional stressors placed on our family. Looking for support becomes a burden and in the end we just don’t. We just cope.

Yours sincerely,

LK Hamilton

The main features of the NDIS that will make a difference to the community are:

  • People with a disability can choose the types of support to use, Better access to education and work opportunities, People with a disability can plan their lives and pursue their goals and dreams

The most important services for the NDIS to provide are:

  • Education support (technology/services/equipment), Life-skills, Support for families and carers

I support the introduction of the NDIS.

The NDIS just makes sense. To simplify something that is complicated for people who already have an uphill battle, makes sense.

I agree for my submission to be made public

Regards,

Ms Lynda Hamilton