Lack of overnight respite and accessible housing for young adults with physical disability and acquired brain injury

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Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Monday, 24 December 2012 11:37:42 AM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

I am a service provider and have struggled within the confines of various services guidelines limitations and restrictions to provide my clients with some kind of lifestyle resembling “normal” since 1996. This has been extremely difficult when there is no residential respite accommodation in our community for young adults with physical disability alone, or Aquired Brain Injury, to go for a respite away from their family.This can help preserve a carers relationship with the one they care for. There is also no possibility for someone with High Physical needs to live alone, as there is not enough affordable and Disability accessible accommodation in the Shoalhaven and overnight care can not be funded long term in the community setting. There is no available Disability accessible housing except for people with intellectual Disability in group homes that are not appropriate for all. Appropriate Department of housing places are full so people struggle or are virtual prisoners in their home because they can’t alter the property they rent and cant move as there is no where to go.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed, The ability to receive services when needed and in the way that suits the person, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Accommodation options, Flexible in-home/outside home respite, Case management, planning and coordination

I support the introduction of the NDIS.

I help to care for many people with Disabilities in the community and have done so since 1996. The major issue from Eurobodalls to the Shoalhaven and as far up as Sydney is there is no Residential Respite or Accommodation for people who have high level Physical Disability or Aquired Brain Injury. If NDIS can help with this issue as well as provide equipment and the high level of services needed including re- education and socialisation for people with brain injury then this would be an invaluable scheme. Service supports do not extend to overnight in the community so if Parents have died or can not continue the only option is Nursing home which is innapropriate. There are no appropriate places for someone in these circumstances to get the support they need to care for themselves in the community as there is no ongoing overnight care. There is also no where for them to go to be cared for.

I agree for my submission to be made public

Regards,

Mrs Susan Moore