Caring for a child with autism and the challenges faced by families

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Monday, 24 December 2012 5:20:06 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

How many fathers leave the family when there is a child with a disability……many

One reason has to be that it is EXTREMELY hard for a family to function normally, mothers are overworked and ALWAYS tired, siblings can feel neglected, fathers feel helpless.

If there is no close family and grandparent help, one can only imagine how these wonderful mothers feel……our beautiful Autistic grandson is loved by all our family, however we cannot be there all the time to help our daughter and son-in- law look after him….he is an “escape artist” and as quick as a wink so we are always vigilent….my daughter is tiny and now weighs 47 kilos as she literally runs all day.

Live a day in her shoes and I can bet there would be more help for her family.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • The ability to receive services when needed and in the way that suits the person,
  • Increased ability to coordinate services to suit the “whole” person/family

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Equipment and home/vehicle modifications,
  • Support for families and carers

I support the introduction of the NDIS.

I have seen what it is like to have a child who is so loved and cared for by the family and let down by the Government

My heart aches for these beautiful souls.

I agree for my submission to be made public

Regards,

Mrs Bev Watts