NDIA Accountability Project

Multiple sclerosis diagnosis and need for disability support

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Wednesday, 26 December 2012 12:27:41 PM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

HAD M.S. FOR APPROX. 14-15 YEARS NOW - OFFICIALLY DIAGNOSED IN 1999 BUT MY 1ST ATTACK WAS 1997. HAD 10 GOOD YEARS WITHOUT TOO MUCH PAIN & DISCOMFORT, BUT, THEN, WENT ON A MASSIVE DECLINE… HAD NO IDEA …BUT NOW KNOW… THERE ISN’T ANYTHING OUT THERE TO INSURE DISABLED COMFORT OR RIGHTS AT ALL. WE DISABLED,SO BADLY, NEED MASSIVE SUPPORT IN EVERY WAY POSSIBLE…

The main features of the NDIS that will make a difference to the community are:

Ensure support and equipment is available when needed, People with a disability can choose the types of support to use, Better access to mainstream support and services, More rights for people with a disability, People with a disability can plan their lives and pursue their goals and dreams, People with disability can choose who comes into their home, The ability to receive services when needed and in the way that suits the person, Increased ability to coordinate services to suit the “whole” person/family, Minimising the number of times people have to tell their story in order to get support, Less red tape, with planning done locally by people who know their community, Access to reliable information about support options, People with disability/family will influence the types of support and services offered, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Therapy and allied health services
  • Equipment and home/vehicle modifications
  • Recreation and community access
  • Support for families and carers

Accommodation options -In-home care and domestic assistance -Flexible in- home/outside home respite -Crisis and emergency support -Positive behaviour support and psychological services

I support the introduction of the NDIS.

AS STATED ABOVE, WE NEED SO MUCH EXTRA HELP & SUPPORT IN EVERY WAY POSSIBLE

I agree for my submission to be made public

Regards,

Miss Cheryl Hendy