NDIA Accountability Project

Loss of Better Start funding for daughter

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 9:23:07 AM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

Being able to access services and early interventions when they are needed. My daughter is eligible for the Better Start funding but I have not been able to access services here in the ACT to be able to put this funding to any use. She is turning 7 in March and will lose this funding alltogether.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed,
  • People with a disability can choose the types of support to use,
  • Better access to mainstream support and services,
  • Better access to education and work opportunities,
  • People with a disability can plan their lives and pursue their goals and dreams,
  • People with disability can choose who comes into their home,
  • The ability to receive services when needed and in the way that suits the person,
  • Increased ability to coordinate services to suit the “whole” person/family,
  • Minimising the number of times people have to tell their story in order to get support,
  • Less red tape, with planning done locally by people who know their community,
  • Access to reliable information about support options,
  • Removal of age barriers to services for children,
  • People with disability/family will influence the types of support and services offered

The most important services for the NDIS to provide are:

  • Therapy and allied health services,
  • Equipment and home/vehicle modifications,
  • Education support (technology/services/equipment)

I support the introduction of the NDIS.

I am hoping it will make many families lives easier by not having to chase our tails trying to find the right people and support and therapies for our loved ones!

I agree for my submission to be made public

Regards,

Miss Beke Pyne