Diminishing respite and wait for supported accommodation

Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012

From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 9:35:25 AM

Please consider this email a formal submission by me to the Senate Standing Committee on Community Affairs Inquiry into the National Disability Insurance Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

I am really concerned that the current availability of respite is diminishing, which means we don’t get a break and our daughter misses out on social contact with her peers. The current wait for supported permanent accommodation is terrible, imy only wish is that I live long enough to see her settled into a group home happily before I die. I don’t think that’s too much to ask.

Why are people with disabilities the forgotten community? Instead of housing so called “asylum seekers” what about people with disabilities who have lived here all their lives.

Maybe it will take until a politician has a child with a disability for me to see the lack of support out there.

The main features of the NDIS that will make a difference to the community are:

  • Ensure support and equipment is available when needed, Better access to mainstream support and services, More opportunities to participate in the community, More employment of people with disability and less reliance on social welfare, The ability to receive services when needed and in the way that suits the person, Increased ability to coordinate services to suit the “whole” person/family, Minimising the number of times people have to tell their story in order to get support, Less red tape, with planning done locally by people who know their community, Access to reliable information about support options, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

  • Support for families and carers, Accommodation options, Flexible in-home/outside home respite

I support the introduction of the NDIS.

Because I want to know that my daughter will no longer be part of the “forgotten community” and will be treated with respect and dignity, which should be a basic human right.

I agree for my submission to be made public

Regards, Mrs Janine Kimberley