From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 21 December 2012 5:29:46 PM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
Finding the information about what services are out there for our specific needs has been a nightmare.
Having to repeat the story and all the endless paperwork that requires more trips to specialists for completion over and over again for each small and simple thing is both exhausting and expensive.
Doing without equipment because we can’t afford it and having to rely on fundraisers and donations to survive is horrendous.
My daughter became disabled due to illness when she was 13 years old, she is now 15 and we are still struggling to find some “normality” in our lives and she is yet to start back at school. We have had our world tipped upside-down and have been isolated and we’re struggling, financially, emotionally and physically…it’s just wrong
The main features of the NDIS that will make a difference to the community are:
People with a disability can choose the types of support to use, People with a disability can plan their lives and pursue their goals and dreams, Minimising the number of times people have to tell their story in order to get support
The most important services for the NDIS to provide are:
Equipment and home/vehicle modifications, Case management, planning and coordination, Crisis and emergency support
I support the introduction of the NDIS.
The NDIS would allow us to access services in a coordinated way with information in one place.
With NDIS support, my daughter can learn to adjust to her illness with specialised support services and become an active positive contributor to society instead of being an isolated disabled teen stuck at home.
With NDIS support my daughter could have the equipment she requires for her ongoing physical therapy.
With NDIS support our family could start living a more normal life, as life revolves around my daughters care and medical appointments…having a holiday and modifying our home would be possible.
With NDIS we would not feel so left out and forgotten about. On a practical level life would improve for not only my daughter, but the whole family.
I agree for my submission to be made public