From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 10:42:32 AM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
I continually have to explain and ask what I can access for the treatment / support for me and my family. If we all were serious about the process of diagnosis / treatment. As soon as the process starts, diagnosis from a professional not self-labelled, WHY can’t a Health Care card be provided without question? Rather than someone being told you are not fit for work and whilst supporting a cerebral palsy child have to decide personally what treatment you can and can’t afford. All without being continually scrutinised, PLEASE. To this date I have been offered nothing other than go through the whole CENTRELINK process again and that’s before you can even process the Disability System. Not sure if you are aware MS although appears to ALL, a physicsl disability, REALISTICALLY is combined with a major mental torture when dealing with the current system. WHY?
The main features of the NDIS that will make a difference to the community are:
More opportunities to participate in the community, Minimising the number of times people have to tell their story in order to get support, Less red tape, with planning done locally by people who know their community
The most important services for the NDIS to provide are:
Support for families and carers, Flexible in-home/outside home respite, Case management, planning and coordination
I support the introduction of the NDIS.
From my experience NOW the system we have does not work. I continually have to explain my existence on this planet after being diagnosed with MS. It’s so easy for you to be labelled from the Professionals and one can’t deny the diagnosis. However, when you take a positive step of acceptance and wanting to move forward everything appears to have a “Handbrake Applied” for the progress of treatment. Having lived with a son with Cerebral Palsy for 26+ years without jumping up&down to get action/results from the system (which we are not prepared to do) WE appear to be on OUR own. BRING ON CHANGE.
I agree for my submission to be made public