From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Friday, 21 December 2012 6:25:41 PM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
I’M NOT SURE WHAT IS INCLUDED IN ‘THE DISABILITY SYSTEM’
OUR 47 Y.O.INTELLECTUALLY DISABLED SON LIVES AT HOME WITH US, HIS
PARENTS.
HE HAS A PART TIME JOB WITH A DISABILITY ENTERPRISE
HE GOES TO A DAY CARE CENTRE ON TWO DAYS/WK
HE HAS PHENYLKETONURIA AND IS ON A STRICT RIGID DIET FOR LIFE
WE MANAGE…….JUST.
OUR MAJOR PROBLEM IS THAT OUR FAMILY CIRCUMSTANCES HAVE CHANGED
RADICALLY IN THE PAST YEAR AND THERE IS NOW NOBODY IN THE FAMILY
ABLE TO TAKE CARE OF HIM. YOORALLA HAVE ADVISED THAT WE MAY WAIT 6
MONTHS TO 6 YEARS OR LONGER. WE MAY NOT BE HERE. WHAT NOW ?
The main features of the NDIS that will make a difference to the community are:
The ability to receive services when needed and in the way that suits the person, Increased ability to coordinate services to suit the “whole” person/family, Older parents and families will not worry what happens when they can no longer provide support
The most important services for the NDIS to provide are:
Therapy and allied health services, Accommodation options, Case management, planning and coordination
I support the introduction of the NDIS.
IT WILL GIVE SOME PEACE OF MIND TO THOUSANDS OF WORRIED CARERS,
MANY ELDERLY, WHO IN THE MAIN, HAVE SACRIFICED THEIR LIVES AND
QUALITY OF LIFE, TO CARE FOR THEIR DISABLED.
THE NDIS WILL ALLOW MANY OF THEM TO NOW SLEEP AT NIGHT
I agree for my submission to be made public