From:
To: Community Affair mmittee (SEN); c
Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 11:57:21 AM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
My son, aged 28 who has Down Syndrome has needed assistance in the past and the common answer was “we do not have the funding” so my husband and I pay for services to assist him in his development. We are at retirement age. Educational training stopped when he left school and to keep up in his reading, writing, money handling and life skills, he needs ongoing help to keep these skills in his head and also hopefully improve on them. He is still at home with us and the plan is that he move into living independently of us, but with him having type one diabetes and needing support to keep his diabetes under control, it scares us as we look into the black hole of the future.
The main features of the NDIS that will make a difference to the community are:
People with a disability can plan their lives and pursue their goals and dreams, The ability to receive services when needed and in the way that suits the person, Older parents and families will not worry what happens when they can no longer provide support
The most important services for the NDIS to provide are:
Life-skills, In-home care and domestic assistance, Case management, planning and coordination
I support the introduction of the NDIS.
Hopefully there will be the finances to pay for services and training. The bottom line is money.
I agree for my submission to be made public