Support for son with Down Syndrome and reliance on NDIS

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From: To: Community Affairs, Committee (SEN); Subject: Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 12:08:32 PM

Please consider this email a formal submission by me to the Senate Standing

Committee on Community Affairs Inquiry into the National Disability Insurance

Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

I feel it is not given relevance that if a Parent/Carer is given a Grant of care for a school holiday period etc , that there needs to be time to liase w[th their chosen Broker. Confirmation of funding for school holiday care is only recieved in mid december. This makes me unable to plan anything over the holiday period because I dont know if or when I have the care. It also does not allow time for the agency to do the rosters and ensure there are staff available over the holiday period, and for the family to work together with the agency around holiday arrangements.

The main features of the NDIS that will make a difference to the community are:

Ensure support and equipment is available when needed, People with a disability can choose the types of support to use, Better access to mainstream support and services, More opportunities to participate in the community, More employment of people with disability and less reliance on social welfare, More rights for people with a disability, People with a disability can plan their lives and pursue their goals and dreams, People with disability can choose who comes into their home, The ability to receive services when needed and in the way that suits the person, Increased ability to coordinate services to suit the “whole” person/family, Minimising the number of times people have to tell their story in order to get support, Less red tape, with planning done locally by people who know their community, Access to reliable information about support options, Removal of age barriers to services for children, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

Therapy and allied health services, Equipment and home/vehicle modifications, Life-skills, Employment support, Recreation and community access, Support for families and carers, In-home care and domestic assistance, Flexible in home/outside home respite, Case management, planning and coordination, Positive behaviour support and psychological services

I support the introduction of the NDIS.

I support N.D.I.S because my son has Down Syndrome and I feel that all of us at some time in our lives will rely on the System support us.Then if the circle of life is complete’ when it is our turn we will give back to this world that we are part of in a posive way.Which becomes our purpose in life. MARGARET. KING

I agree for my submission to be made public

Regards,

MS MARGARET KING KING