From:
To: Community Affairs, Committee (SEN); r u
Subject: sub868Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 12:21:16 PM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
There seems to be so many organisations doing the same thing, offering the same sorts of services and falling over themselves to do it. The quality of our respite carers varies dramatically from ‘no shows’ to those who believe they can cure our son with the activities they provide during their shift. We have also been ‘dumped’ by a program because the carer they assigned to our son could not deal with his behaviour. Everything we have gained in terms of support, assistance (practical and financial) has to be sought out and discovered. In conversations with many parents, most are unaware of just what they are entitled to or what is available to them. Such information needs to be available at the time of diagnosis. It has only been in the last couple of years that DSQ has been of any assistance to us. Before that our Case Managers were inaccessible, having moved to other positions or always in meetings. This was very frustrating. Currently the system feels like a lotte ry. Some families get all sorts of support, while others are left with nothing.
The main features of the NDIS that will make a difference to the community are:
Ensure support and equipment is available when needed, Access to reliable information about support options, Older parents and families will not worry what happens when they can no longer provide support
The most important services for the NDIS to provide are:
Equipment and home/vehicle modifications, Support for families and carers, Crisis and emergency support
I support the introduction of the NDIS.
I believe the NDIS will relieve some of the burden placed on families to provide for their member with a disability. I hope the NDIS will be different and that it will not replace one broken system with another that will eventually fail also.
I agree for my submission to be made public