Daughter's Down syndrome and need for school support

From: To: Community Affairs, Committee (SEN); Subject: sub886Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 12:37:41 PM

Please consider this email a formal submission by me to the Senate Standing

Committee on Community Affairs Inquiry into the National Disability Insurance

Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

My daughter has Down syndrome and has just completed her first year at school. I believe that she has the ability to learn as much as the other students in her class, but only with support. This was completely lacking last year and as a consequence she didn’t reach her potential while in Kindergarten. The opportunity to lay a strong foundation for her to continue in a mainstream class was wasted. She has made a great start on learning to write and read, but without constant reminders and encouragement, she loses focus and interest and forgets the correct way to do things. At her age, provision of a support person at school would make a huge difference to her future, by allowing her to acquire vital skills early and accurately.

The main features of the NDIS that will make a difference to the community are:

Better access to education and work opportunities, More employment of people with disability and less reliance on social welfare, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

Education support (technology/services/equipment), Life-skills, In-home care and domestic assistance

I support the introduction of the NDIS.

Because all citizens, with or without a disability, should be able to live fulfilling lives without worrying about a lack of resources, support or finance.

I agree for my submission to be made public

Regards,

Ms Manda Leong Johnston