From: To: Community Affairs, Committee (SEN); Subject: sub901Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 1:04:31 PM
Please consider this email a formal submission by me to the Senate Standing
Committee on Community Affairs Inquiry into the National Disability Insurance
Scheme Bill 2012.
The current disability system has many problems that need to be addressed.
My daughter who has a severe intellectual impairment has a Lifestyle Package and has to live with a person or persons she does not know or who are not that compatable as she does not have sufficient funding. How will NDIS affect her current funding?
Organizations that have brokered her funding in the past and present have either poor staff training or not able to find quality care staff. I have found most carers do not care, won’t clean, can’t cook or do laundry.
My husband and I are her Biological Parents, Legal Guardians and Administrators and Statutory Health Attorneys. We still take her to medical or dental appointments. I recently had to care for her daily when she was admitted to hospital for two weeks with a broken pelvis. I then brought her home for six weeks to be her full time carer. No staff were sent to relieve me in those eight weeks.
Recently we were told by Carers they are no longer allowed to shave legs etc with a safety razor, not allowed to use any normal over the counter product like moisturizer on my daughter’s skin that does not have a chemist sticker on it. After six years of doing the above it was now not allowed. Carers are not allowed to clip finger and toenails.
All of the above are normal daily/weekly grooming activities that all women do for them selves in their own homes so who will now do this for my daughter? Her care staff are all females and willing/capable of grooming my daughter. Pensions do not cover these necessities.
The main features of the NDIS that will make a difference to the community are:
Better access to mainstream support and services, More rights for people with a disability, Access to reliable information about support options
The most important services for the NDIS to provide are:
Support for families and carers, Flexible in-home/outside home respite, Crisis and emergency support
I support the introduction of the NDIS.
I support the NDIS scheme; if more families receive the help and support they need before the family is in crisis.
If every person with a disability is registered on a disabled persons register via Centrelink so that they do not slip through the cracks.
If the Community Visitor or similiar can be available to the disabled still living at
home with family for support and information.
If funding is ongoing for the disabled person to live in supported accommodation so that aging parents can have some quality of life instead of being carers until their dying day.
If families receive better education so as their disabled person can live a life they deserve in supported accommodation and have as normal a life as humanly possible.
I agree for my submission to be made public