Difficulty accessing respite care and essential services for daughter

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From:

To: Community Affairs, Committee (SEN); t

Subject: sub953Submission to the Inquiry into the National Disability Insurance Scheme Bill 2012 Date: Thursday, 17 January 2013 2:47:51 PM

Please consider this email a formal submission by me to the Senate Standing

Committee on Community Affairs Inquiry into the National Disability Insurance

Scheme Bill 2012.

The current disability system has many problems that need to be addressed.

Respite care 1 weekend a month …not enough….inability to access low doc loan to purchase suitable car ie: with ramp access & wheelchair support currently lifting a 27yr old high needs adult into & out of car….only 1 wage into home as I am unable to work due to caring role unable to afford dental ,optical services unable to afford health care and after 27 yrs of lifting body starting to break down unable to afford holidays even at a low cost so if these services are looked at and able to be made affordable would be a help. I am on call 24/7 and there are no options not for us as there is no place offering what would be necessary for our daughter that needs to happen .

The main features of the NDIS that will make a difference to the community are:

Ensure support and equipment is available when needed, People with a disability can choose the types of support to use, Better access to mainstream support and services, Better access to education and work opportunities, More opportunities to participate in the community, More employment of people with disability and less reliance on social welfare, More rights for people with a disability, People with a disability can plan their lives and pursue their goals and dreams, People with disability can choose who comes into their home, The ability to receive services when needed and in the way that suits the person, Increased ability to coordinate services to suit the “whole” person/family, Minimising the number of times people have to tell their story in order to get support, Less red tape, with planning done locally by people who know their community, Access to reliable information about support options, Removal of age barriers to services for children, People with disabilit y/family will influence the types of support and services offered, Older parents and families will not worry what happens when they can no longer provide support

The most important services for the NDIS to provide are:

Therapy and allied health services, Equipment and home/vehicle modifications, Education support (technology/services/equipment), Life-skills, Employment support, Recreation and community access, Support for families and carers, Accommodation options, In-home care and domestic assistance, Flexible in home/outside home respite, Case management, planning and coordination, Crisis and emergency support, Positive behaviour support and psychological services, Interpreters and other communication support

I support the introduction of the NDIS.

I really don’t yet as I have asked for information and in return have received not enough for me to make an informed opinion as you can see I have ticked all boxes as three is insufficient we need all of those services to happen plus some I sit at home with no life as I have no option to earn a living to help with finances that is my choice to look after & love my girl but there is no other option.

I agree for my submission to be made public

Regards,

Mrs Lyn Tisdell